The Exhaustion Problem in Extreme Parenting

I am exhausted in a way that parents of neurotypical children may never understand. After 8 years of dark, impossibly difficult, and sometimes scary ADHD behavior, parental burnout is taking its toll. Here’s why I think it’s high time we acknowledged the tired truth about parents who are always ‘on’ while raising children with extra needs.

i am exhausted

Every parent spends some amount of time in the pit. You know the one — where you second guess everything you are doing and wonder how badly you might be screwing up your child’s future. Parenting children with extra needs — medical, complex, behavioral, mental, and/or physical health — adds a very heavy layer of anxiety, fear, and guilt to that parenting pit.

Too often, a child’s mental illness, behavior diagnosis, and invisible disabilities go unnoticed as their needs take longer to accurately identify and, in many cases, because they are labeled as “trouble” before the proper services are put in place to meet their needs. This can feel frustrating for teachers, providers, and specialists involved in the child’s treatment, so imagine how their parent or caregiver must feel.

In a recent meeting at my child’s school, I became keenly aware of the fact that the student they encountered in the classrooms and hallways was a very different version of the boy we saw at home. My son’s five behavior diagnoses are documented for all school officials and teachers to see, but we learned that his symptoms vary widely from one environment to the other.

My husband and I are grateful that our extreme child has learned and developed the coping skills he needs to keep his impulses (mostly) in check while at school, but that means at home we are delivered what is left of him after a long day of sitting, learning, and holding things inside.

This version can be very dark, impossibly difficult, and sometimes scary.

After eight years of living this way each day — of sleeping lightly with one eye open, worrying daily for his safety, and watching every word and action — we are mentally exhausted. It is a brand of tired that feels impossible to describe to anyone who isn’t living it, but the effects are now beginning to wear on our bodies and minds in a long-term way.

[Take This Test If You Think Your Child Might Have ADHD]

I am Exhausted from Hypervigilance

Hypervigilance for us is not just anxiety and alertness; it is a constant state of giving of oneself for the needs of another. Vigilance means to be keenly watchful, detecting danger. This means, much like combat soldiers whose safety hinges on their ability to stay alert, extreme parents are forever ready to jump into action to keep their household and their child safe — even if that means protecting them from themselves.

Causes of Hypervigilance in Extreme Parents

  • Anxiety from chronic needs
  • Physical toll on the body
  • Emotional investment to child and partner
  • Fear for safety of household members
  • Financial strain from excess medical expense
  • Constant judgment from outside sources
  • Fear of job loss from calls from school/appointments

I am Exhausted from Trauma

Since our culture is beginning to further research and explore the field of mental health, more people are being exposed to words like “trauma.” For this reason, it is difficult to pinpoint one clear definition as the meaning is interpreted differently in different contexts. However, most commonly trauma means an experience that was deeply painful or terrifying.

Raising a difficult or medically complex child is not something that many parents could call traumatic. That connotation delivers a feeling of guilt along with the insinuation that you somehow love your difficult child less. This is far from the truth. A parent can suffer trauma and still be an excellent parent.

[Do You Struggle With Anxiety? Take This Self-Test Now]

Parents of extreme children desperately love them. At the same time, they are typically in a serious state of trauma that they fail to identify because they are too wrapped up in appointments, insurance battles, and IEP meetings to see past those immediate needs.

Things to Know About Trauma and Parenting Extreme Children

  • People don’t choose trauma
  • Your trauma may be triggered by your child
  • Your trauma and your child’s trauma are separate
  • Others may see your trauma before you are able to identify it

I am Exhausted from PTSD & CPTSD

Post-Traumatic Stress Disorder (PTSD) generally develops following a stressful event. This diagnosis is common and typically associated with war veterans or people who survive a major catastrophic event.

For parents raising children with mental health needs, trauma can come from recognizing red flags, researching symptoms, and receiving an initial diagnosis. This trauma is exacerbated when a parent begins to mourn and grieve the loss of the childhood (and the child) they’d long imagined.

Parents of children with special needs often experience repeated stressful events including evaluations, medical tests and procedures, hospitalizations, inpatient treatments, and recurrent emergencies or self-harm attempts. The chronic anxiety that comes from having a child with a mental health or behavioral diagnosis can trigger symptoms of PTSD in parents and caregivers.

A related and newly researched condition called Complex Post-Traumatic Stress Disorder (CPTSD) is becoming more widely recognized by doctors and specialists as well. Unlike PTSD, which presents after a single traumatic event, CPTSD results from repeated exposure to trauma over months or years.

The symptoms of CPTSD usually include those of PTSD, plus more:

  • Reliving traumatic experiences, sometimes including nightmares or flashbacks
  • Avoiding specific situations
  • Changes in feelings/beliefs about yourself and others
  • Hypervigilance or hyperarousal
  • Difficulty sleeping or focusing
  • Somatic symptoms
  • Lack of emotional regulation
  • Changes in consciousness/dissociative episodes
  • Negative self-perception
  • Extreme feelings of guilt or shame
  • Chronic worry, fear, and/or anxiety
  • Difficulty with relationships
  • Distorted perception of reality (This can include how you view your extreme child)
  • Displaced connection with spiritual or world beliefs
  • Feeling of hopelessness

Friend, here is what we must remember: No one who is being completely honest would choose to raise a child with extra needs because no one would wish those extra struggles on their child or their self. Parenting through mental health diagnoses is a difficult reality; you are expected to constantly give beyond what is realistic for your child — all while simultaneously balancing budgets and dinners, prioritizing marriage and meals, planning appointments, booking specialists, getting to therapy, coordinating IEPs, and brushing off judgments from others — sometimes from those who are supposed to love and support you most.

It is a path that would destroy many, but here we are — in the trenches together. You aren’t alone. Look for communities where you can get resources and encouragement from others just like you because sometimes just knowing someone out there understands can be the key to overcoming your exhaustion for one more day.

[Learn More About ADHD Support Groups for Parents]

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8 Comments & Reviews

  1. Thank you for this article. My daughter is 20 now and I still am involved with everything with her. College and relationships and jobs and etc. It never ends, the constant battles, judgements, comments, events, dramas, and so forth. All the schools want is that “special” form so they can get more money from the state. No help is provided when they get this form. And it is always the parents fault for having this child who just needs a little understanding some times about what is going on. We don’t do any holidays or parties or events anymore. Just too much focusing on nothing…too much and why? And all counselors want you to do is get rid of everything in your life and pay the expensive fees and take drugs that don’t work or take too long to “see” an effect. PTSD? Yeah, I have it. Every breath I take is a PTSD moment.

  2. Oh my, tmclerc — I feel so sad for you and your daughter reading this. But I suppose it stems from empathy, tied up with fear for my own future: my daughter is 13. I’m sorry. Why are holiday parties so hard? They are for us right now, as well. And my every breath feels like new trauma, too… but I envision a brighter future. Would you like to write more about your experience? I’m sorry it’s been so hard.

  3. This is the first article I have read that comes anywhere close to describing what our life has been like over the last 25 years.

    My daughter was only diagnosed with ADHD last year, aged 24, after a lifetime of challenging behaviour & years of mental health problems. No one took my requests for help seriously when she was younger because academically she was such a clever & talented girl; masked her difficulties & held it together at school, then completely let rip at home, regularly, every day.

    I am a teacher & single mum. I have provided for my children for the most part without financial, practical or emotional help from anyone else, & managed to hold down the same job for 19 years. When she was 18, experiencing psychotic episodes, & talking about taking her own life, I explained to my own headteacher that I might just need to take a day off now & again in order to access support for her. I was told I was “lacking in resilience“ compared to my colleagues.

    I no longer live with my daughter – I have been lucky enough to move a short distance away whilst still providing for her, & I’m better able to help her when I’m not dreading going home every evening. She now has a partner who I know will contact me immediately if she is in crisis again (which she regularly is). I will never give up on her. But I suffer from constant anxiety & fear for her future, feel I have failed at being a parent, which was what I most wanted to be, & I am completely & utterly exhausted.

  4. Thank you for this little article — my daughter with severe ADHD is functional at school but boy is life hard with her at home for the rest of us who have to live with her. We couldn’t love her more but it really is like living in a constant war zone, tripping over mines over and over again. We’re in a cycle of utter destruction and then setting up again. To say this is exhausting — our language really fails us here. I really fear for the teenage years. We’re looking into boarding school for high school. I honestly think that may be better for her as well as for us.

  5. Thanks for this article! My son will be 13 in June and I still have to monitor him at home like I did when he was younger. I am a single parent with ADHD and it’s more difficult to monitor him every day and try to get household chores done myself. My house is a mess and I feel guilty about everything, especially when I take the weekend to be lazy myself from the exhaustion of the week. I appreciate reading these articles and comments. Usually brings a tear to my eyes knowing that I’m not alone and someone does understand what I’m going through.

  6. We did neurofeedback treatment for our sons anger and emotional battles. 40 treatments and it was successful. We are now trying LENS for his anxiety.

  7. Thanks for this article. My daughter is 33, now lives on her own, but suffers most of the time. I feel as if I have to show her that I’m really strong for her but the stress and worry has a huge toll on my health so it’s a vicious circle. Her depression and anxiety has also rubbed off on me – they say it’s contagious. A course of DBT helped me to realize after all these years, that I can’t help her in any way mentally or emotionally and I’m doing my best to get on with my life as an individual, and not as mother of. Not so easy but I’m doing the best I can.
    Completely identify with neverstoptrying ” I suffer from constant anxiety & fear for her future, feel I have failed at being a parent, which was what I most wanted to be, & I am completely & utterly exhausted.” I feel I need to hug you 🙂

  8. As a father of a 6 year old with ADHD, me and my wife are utterly burn out. Somedays my wife just cries, and my reaction is to just utter mental exhaustion. My son is starting to do well in school, he is a very good boy, obedient and has very good social skills, but taking care of him is so demanding. Most people don’t understand and can’t comprehend the challenge of parenting a kid with moderate ADHD. I tell people that he is the equivalent of having 2 or 3 children, because we end up spending 2 to 3 times more on everything. For him to have a “average” performance on most things, it demands immense efforts on us. I am just so tired, Thank you for writing this article.

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