usasusie

My Forum Comments

Viewing 4 posts - 1 through 4 (of 4 total)
  • Author
    Posts
  • in reply to: How do you cope? #107213
    usasusie
    Participant

    I’m not sure I have any answers, but if it helps I feel just like you at the moment. My kids are older, but aside from that I read your post saying “yes! Me too! Yes!”. I have not been officially diagnosed, but I did go through some research on this last year and I am pretty sure I have ADD. I feel like I have been flailing my entire life. And it’s bringing me down. Also keep in mind that this is a hard time of year. New Year’s resolutions quickly come and go. Maybe pick one thing. I just joined a program that starts this week called uncluttered. It from a guy Joshua that can be found on social media with – living minimalist or something like that. Anyway – Injust want you to know you aren’t alone. Hang in there – one step at a time.

    in reply to: Mom on the verge…I'm not alone, right? #85048
    usasusie
    Participant

    I am relatively new to this topic and am still researching much myself. You mentioned wanting “science” or “facts” and I just want to offer these 3 thoughts:

    There is something called SPECT imaging which is a brain imaging similar to an MRI – however it appears to monitor the brain in various situations, thus being able to identify areas of the brain that are overactive, underactive, etc. The intent being to then target treatment to the “science” of how the brain is working. There is a clinic in some of the bigger cities called the AMEN clinic (AMEN is the founding doctors last name). I have not tried this nor do I know anyone that has, but it does look interesting. If anyone here has experience with SPECT imaging please let us know!

    I agree wholeheartedly with the person that spoke about finding a place to place your child if the school cannot provide appropriate education. I have a friend who dealt with this and also got an attorney. She was eventually successful in getting her child transferred to a specialized school at the district’s expense. There were several layers to this so it will be draining and there is a cost associated with it (legal fees, independent evaluations) – but in the end it could be beneficial.

    Lastly, I have another friend who has a child with very similar things as described above. After years of medications and psychiatrists, she continued to pursue a line of thinking that no one would initially listen to – Lyme Disease. I do not know much about the science behind this – but apparently it can cause many of the similar symptoms. Her child was in fact diagnosed with a Lyme derivative, and is currently in a heavy course of treatment for such. Lyme disease is not always detected in initial exams, so a visit to a specialist on Lyme and autoimmune diseases may help.

    I know the thought of pursuing all of these other options is exhausting – especially when we are just trying to get through the day. Hang in there Mom – you are doing great.

    in reply to: Constant change in interests #80705
    usasusie
    Participant

    alishad002 – I am new here and came across this page while researching info for a family member. I have never considered the fact that I may have ADD, and yet the more I read, the more I resonate with so much of what is being said. Ironically, I have struggled with exactly your frustration for a long time – possibly my entire life. I am currently 51 and spent 20 years as a stay at home Mom. Prior to that I was a CPA in a fast paced environment. Over the years I have held many volunteer positions. I often felt scattered and all over the place, and yet would hyper focus when I needed to. I often became bored very quickly in the volunteer positions I took on, and then the position became a chore. I don’t know if this helps, but I recently have been thinking that what I need is a job that is methodical and structured, but different each day too. Something that is the same, yet changes frequently as well. Something that ends with each day and starts anew again the next day. Something that doesn’t require long term follow up. I keep coming back to things like retail, customer service, the news industry, travel and tourism, perhaps even something medically related in a hospital or out patient surgery center. Something where the job entails helping people for a short time, making their day, and then moving on. A job that doesn’t require long term follow up or 6 month long projects. I am not sure if you have flexibility in your schedule, or the ability to work outside the home, but I recently went back to work part time and I think it would have been quite beneficial to me and my family to have done this many years ago. Good luck to you! You are not alone. As I read and learn more about ADD, especially in adults, it seems a big part of the picture is accepting that we may have to see ourselves differently than we have all these years, and that it’s ok. I am new to this journey – but I certainly wish I knew this earlier!!

    in reply to: Constant change in interests #80699
    usasusie
    Participant

    Rowan that is exactly how I feel! I came across this post while researching some info for a family member. The more I read, the more I personally resonate with so much of what is being said here. As with you Rowan – I have struggled with the downward spiral of feeling “lazy” and incompetent. I believe ADD is a medical condition – just not one I ever considered I may have. I always just thought I was lazy, unmotivated or depressed. I think I need to look into this more!

Viewing 4 posts - 1 through 4 (of 4 total)