My Forum Comments
I can’t even count how many times I have been told that the generic is “exactly the same” as the brand. I’m sure you didn’t mean it like that, krevus, but it punches a button for me. I’m not sure who’s trying to fool whom — doctor to patient or big pharma to doctor or big pharma to patient or round and round — but this much is clear: Generics ARE NOT the same as Name Brands. And judging by some postors here, BRAND NAMES are no longer the same as brand names! Way back in the day, college kids were manufacturing cleaner products than these multibillion-dollar corporations. Well, especially if those corporations are depending on China and India — with NO REGULATIONS — to be doing the manufacturing.
So much in this country is out of control.
Dear Melanieem, thank you so much for posting about your experience. And I just noticed General 529’s post as well.) Have you registered a complaint with the manufacturer and/or FDA, as suggested by moderator Penny Williams and poster Mrs. Farnsworth? Not that either of those things will likely do much good, but we need to do all we can. I almost feel as if we consumers are on our own out here, wandering the wilderness, helping each other find efficacious support with our daily ADD struggles. It’s infuriating to not have a reliable government watchdog agency for medications. And alarming we can’t find reliable medications,
Let’s please keep posting and helping one another and TRYING to get our concerns at least HEARD.
And my doctors can’t seem to help. Pharmacists are sympathetic but not encouraging. Why should the patients have to research the manufacturers and distributors and hunt down the answers and scramble for solutions? It IS wrong.
I’m in the Philadelphia area.
It seems that, every few months, one manufacturer quits making its off-brand concoction and that another manufacturer steps up to supply for the next few months. That one stops, and a third maker takes its turn. It’s creepy. I picture them sweeping up the factory floor and including that in the capsule mix. Every coupla months I consider quitting meds. The efficacy can be so piss-poor and unhelpful. It’s interesting that you didn’t always have this dosage/quality problem. I wonder when it started. Probably before 2006. And why. And how. But mostly I wonder what we can do to stop it.
Please be aware, jwilli, that this Adderall discussion was resurrected from January and then June, so it hasn’t been a rousing exchange of ideas at any time. People like me, with ADD, get distracted by other things in life. Plus, really long posts are draining to read. Plus, poor ADD-meds supply is a perennial problem, so how much more is there to add until the next batch turns out to be even worse than the last? This is long-haul-solution problem-solving.
Back atcha in a coupla months.
OMG I’m so glad to have found this post.
I have been scrambling and researching and visiting various pharmacies looking for the generic I’d had for a couple of years. It wasn’t great but it didn’t give me a raging headache. Independent store found a diff gene ic. Not great but better. It’s insane that we can’t get what we need.
Is it bc of the neurological disorder we have? That People don’t believe it’s real? Or that they think we’re trying to get high? Or that there are enough people diagnosed to make it worthwhile to Big Pharma and the Insurance Industry? I’m in my 60s. I can move through my life better with quality medication. But I, too, am ready to give up and go without therapeutic meds. Which is just wrong.
If only we could combine our voices and power and effect change in the manufacture of useful ADHD help.