My Forum Comments
March 21, 2021 at 6:54 am in reply to: I am a writer and researcher with ADD. Any advice on how to organize my thoughts #196611
Why has no one ever told me about this technique?
I am going to be doing this from now on.
You don’t have to have EVERY symptom to have ADHD. I don’t forget or lose things at all which is a major indicator, and am still diagnosed with ADHD.
Even though you wake up easily the hard to get to sleep is a symptom its self and saying your brain wont let you sleep is part of the hyperactive mind.
I never slept during my 11-18 school years but had 100% attendance and punctuality because I could just get up an go.
Mine has 5 alarms and can be customised over multiple days. I don’t know about the more recent ones though.
I use the Xiaomi Mi band version 2, current is V5 which is less than 40 dollars on Amazon
Its small, has vibrating alarm, heart rate, steps, 2 week battery, can make it vibrate when you get calls and texts.
Hope you fond something suitable!
They wont diagnose in the UK without symptoms shown in childhood but it is self reported / reported by parents / shown in school reports.
Also from personal experience being diagnosed as dyslexic at 9 made my school think all my problems were dyslexia related and nothing else. Only diagnosed ADHD at 30.
If your in the UK (not Scotland because it doesn’t apply) search “the right to chose ADHD law” you can skip the UK waiting list and be assessed with in weeks/months with private healthcare providers which is paid for by the NHS.
There is one psychiatrist firm that supply you with the paperwork you need to take to the GP for free to get referred.
Thank you for detailing your experience, my NHS assessment recommends Lisdexamfetamine (non brand named Vyvanese)
I haven’t had my meds appointment yet, I don’t want to go on meds. Or more specifically I don’t want meds everyday.
You said you had to wait for side effects to go away. And I am worried that if I only want to use meds some of the time I am going to be battling constant side effects.
(I am cautious with meds as my family has a history of side effects and I have other medical conditions to be cautious about.)
I know every one is different, but would you be willing to share what side effects did you had?
Also do you take a break from your meds or have them every day?
Thank you for sharing.October 21, 2020 at 4:00 pm in reply to: 26yo reading psych eval from 15 – feeling hopeless #186506
I would take IQ scores with a pinch of salt, depending on the test they are bias to white middle class males.
And I remember reading a study about when people with ADHD were allowed to take untimed IQ tests they score the same or better than NT peers, this was attributed to working memory and distraction issues.
However, as your assessment identified quite a few areas of weakness that are linked to problems found in people with dyslexia have you ever been assessed for it?
I was diagnosed with dyslexia waaaaay before ADHD and it is similar in that there are a spectrum of problems; for me for example at 9 years old my spelling was in the 19th percentile and my maths in the 94th and my reading in the 78th.
I still cant spell, does it mean I couldn’t win a spelling bee? If I really put in the work maybe I could I just don’t want to!
In any case your report was done many years ago by someone who doesn’t know you, and IQ isn’t set in stone if you practice you can increase your score for an IQ test.
What I would think about for yourself now is what you want to do in life and how understanding your issues and finding accommodations for them will help you get to where you want to be.
It sounds like you have a lot going on, if you look on your GPs website you should be able to self refer to general counselling services like iCope. They might be able to help while your awaiting more specialised help from an ADHD specialist or they maybe able to refer you to a specialist.
Sadly our system only cares about those who scream the loudest, 4 weeks is to long you should contact your GP again and ask for more help or ask to speak to a different GP at your practice.
(I go to different GPs at my surgery for different issues because some are more knowledgable / receptive than others)
I am just recently diagnosed and haven’t told my family, as my family consists of one person who would deny it and not spend anytime getting to know the condition or my issues.
I told my childhood friend who also recently was diagnosed with ASD and she suspects she has ADHD. It was fun reminissing about being the two odd kids.
I also told 3 people who I used to work with and are now just friends with, the immediate reaction was:
“Really? I mean is that confirmed by a doctor because, just no.”
But that’s the reaction I expected as I have spent my entire life masking way my struggles to the point where I just seem like an underachieving loser who has accomplished nothing.
More importantly is the reason WHY you are going to tell someone, I told that particular group because one of them has a son who had recently been sectioned for mental health issues and he was found to have ASD and they were considering ADD as well.
She asked me how I knew so much about the conditions in conversation and I have family members with ASD and ADHD and have been through a lot of different problems (including sectioning) and I wanted to back up what I was telling her and I just came out with it.
I am also dyslexic and I have always been open about it when I felt like it was important; I found in my first job that it stoped the manager bulling me about my spelling. In future I will disclose ADHD when / if needed or if I want to.
I am also in the UK and was told by my ADHD treatment team this week the following:
They will only keep prolonged contact with me while adjusting the medication type and level and that is all.
Once settled on one I would be referred back to the GP to keep an eye on the condition.
Any changes should be reported to the GP and they are to decide if to refer back to the clinic.
The only deviation from this is if the medications are causing sever side effects such as suicidal thoughts / depression / extreme weight loss to contact both the GP and the clinic immediately.
Have you told your GP / clinic team about how the meds are making you feel?
Sounds very suspect, I would put a letter with your complaints and say you want to know if the company guidelines dictate that people have to have substance abuse etc because he could be harming more people than helping and highlight what the specific problems you had with the assessment are. Maybe he he hasn’t been trained in ADHD being a spectrum or in female ADHD / ADD, maybe he is used to clients who have fallen apart more with ADHD but I am very glad you didn’t take his word as gospel!
I hope university goes better this year, defiantly apply for DSA they can get you useful equipment for your course and make the tutors have to give you copies of power points etc before lectures, and make sure they give you extra time and rest breaks in exams in a separate room.
I am also from the UK and know the endless waitlists.
Firstly stick with the NHS waiting list you are clearly struggling enough and aware enough to know you need help if the NHS decide its not ADHD they might have alternative help.
If your assessment had been via the NSH and they had said its not ADHD you are entitled to a second opinion.
You never know how experienced the assessor is and some high functioning people need assessing multiple times to catch everything especially if ADHD overlaps with ASD.
Now with your university issues, have you applied for Disabled student allowance (DSA).
As you are awaiting diagnosis and have been told on the NHS route high likely hood of it that is enough to get your university to give you accommodations and if your not already taking to the disabled student department of your university you should do so now. Right now.
In terms of the private diagnosis route you took, if they only asked 5 questions and kicked you out that dosen’t sound like an actual assessment more like a consultation. Did they ask to see old school reports or make you fill in the scale ratings? Did they ask your girlfriend anything?
How thoroughly did you research the person / practice before hand? How long had they been practicing for?
I would right to the practice if if is not just run by the one person who assessed you and point out what you were unhappy with then if you get an diagnosis via the NHS you can have that to back you up.
Can you get yourself referred to a general therapist while you wait?September 27, 2020 at 7:15 am in reply to: Sister w/ ADHD, I'm out of patience and she thinks I'm selfish #184300
I have ADHD but am obsessed with being on time, and I have a similar problem with my mother; I too have suggested we leave at different times and her response is “Well there is no point going then is there”.
My mum has social anxiety issues related to PSD so she needs me there as a buffer, if people talk to her she can dump the conversation on me (which I hate).
You need to fund out what your sister expects of you, then think about what you are or arn’t willing to help with and then just set up clear boundaries.
It sounds like your mum just dors anything your sister can’t/won’t do for herself.
So for example if you don’t want to run around looking for her shoes every day (I wouldn’t either), tell her you will help her make an organisational system where she can find them easily, there are some good tips on this website for different organisational strategies.
You are being supportive but also pushing for independence.
Also just for yourself maybe look at a few of the parenting teenagers with ADHD articles, it might help you frame how you talk to her or approach subjects differently to help prevent arguments – it worked with my 50+ year old mum.September 7, 2020 at 8:40 pm in reply to: Would it be helpful for a successful 40YO to be diagnosed with ADHD?! #183225
You also should provide her with info on both Inattentive & Hyperactive symptom lists.
You have researched ADHD but she could still have the misconception of it being an ‘hyper boys disease’