onaverylongpath

My Forum Comments

Viewing 14 posts - 1 through 14 (of 14 total)
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  • onaverylongpath
    Participant

    Many pats on the back to you hazerhea, I’m sorry you’re in this boat too. Don’t give up and don’t get gaslit by anyone who claims to know you better than you!

    onaverylongpath
    Participant

    How honest and open does a patient need to be with past records? Is it a law your have to tell them what you’ve told previous doctors? Can limit records requests to the bare minimum? I only see categories and one date range field. Do doctors get suspicious?

    How do doctor’s brains and culture work?

    I end up simply telling all anyway because I impulsively blurt it out (haha. sigh.)

    I hate feeling like I can’t trust the people who are supposed to take care of me. Can the magazine research how to best advocate yourself without getting painted with biases? Or how to find out if a potential doctor has biases when all they are is a phone number and a website?

    onaverylongpath
    Participant

    I used to say ADD, but, I think its ADHD and I just didn’t want to admit some of those symptoms.

    in reply to: Looking for vibrating watch alarm #196083
    onaverylongpath
    Participant

    How many alarms can you make? The product descriptions don’t say

    in reply to: Help – struggling to wait. #196082
    onaverylongpath
    Participant

    Glad to hear your steps forward. Write that letter! Break it down in to chunks, don’t get overwhelmed by the emotional side of it and bounce off. Please share it when you’re done so we can read it.

    Side note about Red Bull: Red Bull and other “energy drinks” usually don’t contain much more caffeine than a cup of coffee, but they do contain a LOAD of sugar and artificial chemicals. In college I used to think that they were better for helping me stay up, but, actually it just made the crash even worse. They were also very expensive little cans. Don’t get sucked in by the sky divers and extreme sports marketing – it’s just liquid candy.

    in reply to: Help – struggling to wait. #196066
    onaverylongpath
    Participant

    I am also struggling to wait, as evident from me posting and posting and posting and pacing and pacing thinking about what to say. I’m hyper focused on <i>getting somewhere</i> I can’t work and can’t think about anything else. Perhaps it is rose colored glasses, but, I feel that before starting on this phase of my self improvement and discovering the label I was less unhappy. Ignorance is bliss etc etc.

    After I discovered the label and all my symptoms were laid bare before me it was very joyous. And then I heard there was treatment that could work for me I was really really happy! And then when I looked in my medicine cabinet and didn’t see a bottle of non-stimulant medicine, and I don’t have these life skills yet, and everyday I’m still making the same mistakes, and I have more out going e-mails and calls for appointments than in going appointments, I’m more unhappy than before it feels. Even coming here feels like I’m just teasing myself and stringing myself out instead of healing. My partner is getting sick of the rumination too. Its all I’ve talked about for 3 months and I can’t stop.

    So, to help me struggle less while waiting I’m trying to accept I just have to wait and be patient, I cannot will this process to go faster, to be less cynical and pointing our when I do all my symptoms, to work on exercise and ADHD life skills over pills, to attempt to engage in one of my hobbies and remember that life exists outside the struggle, to talk about it less.

    All I can say is that I’m trying these, not that it is working (yet) of course.

    We’re experiencing grief. We’ve lost so much. Its witnessing the death of the life we could have had and could have if only there were more opportunities. So, try using grieving advice like someone’s died. Much hugs from across the Atlantic.

    Fake hope until you have it. I’ve said “tomorrow’s going to be a better day” for 8 years and now it is better in so many ways. Like being here instead of calling myself “dumb, lazy, and hopeless”. You can do this!

    in reply to: Recent post says “This post is wait moderation” #196038
    onaverylongpath
    Participant

    Thank you!

    in reply to: Is lithium contributing to this? #196036
    onaverylongpath
    Participant

    Hi Kerplunk. Every mental health professional and doctor agrees my blood levels are normal, and my extremely tiny hand tremor is okay. It has stayed the same through my entire time I’ve been on it. The neurologist who said this to me also said I should not change my dose or regiment.

    I haven’t gotten regular blood tests. A psychiatrist said that once a year testing should be fine at this point, and… I guess I’m due for that. I’m guessing it’ll show the same “a-ok normal” because my bipolar symptoms continue to be gone year after year.

    onaverylongpath
    Participant

    I’m actually so well stable on my bipolar regiment that everyone agrees shouldn’t be changed my former psychiatrist was comfortable just telling my primary care doctor to just keep prescribing the meds and ordering a lithium test once a year. I’m extremely lucky that by now bipolar is a non-issue in my life.

    I’m hesitant about seeing him because I’m worried he’s latched on to “bipolar only, no commodities”, I saw him for 4 years fidgeting in his chair saying “bipolar is good but I’m just still stupid and can’t make progress on any of my life goals” and he was quicker to follow me on a crazy OCD diagnosis than notice this. Also, it is office policy to only talk about ADHD after neurological testing and my recent test said “it must be some untreated facet of your well treated bipolar that is causing this.”

    See https://www.additudemag.com/forums/topic/how-to-get-mental-health-professionals-to-listen-past-bipolar/

    onaverylongpath
    Participant

    Thanks anyway!

    Yes I am. Many people, including my own research, has said that stimulants would not be good for my bipolar. I believe non-stimulants work for many, and I might be in that group. Its worth the risk, I just have to figure out a way to get there with limited options and judgmental doctors. This question is about navigating the gatekeepers biases correctly and learning what not to say.

    I know from my parent’s struggles trying to get pain treatment how quickly the label “medication seeking” can get applied and stick and ruin you.

    in reply to: Speech Issues #195979
    onaverylongpath
    Participant

    I also find, especially at night, I just speak… poorly. The first clause and second clause of a sentence end up having different tenses, I know what I want to say and then when I’ve come out I’ve picked really odd synonyms, or something that just kinda sounds…. dumb.

    “He was going to get his car fixed, but, now he’s not sure” turns into “He didn’t fixed his car yet. But soonish maybe. …Sorry, why did I say that?” or worse “He didn’t get it on his car yet.” What?

    I can read just fine (I think), but when I read out loud I rewrite sentences as I go, fairly seamlessly, to make them match my voice.

    “Jake had found the serum to be useful and was waiting on lab reports from the space station”->”Jake found the serum result to be useful and waited for space station lab results.”

    People often don’t notice, but, if it is a very long sentence, its like an AI program that can’t keep up the illusion for long.

    It would help if I didn’t try to read aloud and do voices and motions for all the characters, but, where’s the fun in that? 🙂

    in reply to: Diagnosis Says I Don’t Have ADHD… Now what? #195978
    onaverylongpath
    Participant

    Hi!

    You wrote Slinda! I’m in the exact same boat as you. You have a 6 month lead! …um…… I’m sorry I don’t have more to add beyond that. I’ll be watching your progress on this forum. Keep us posted!

    in reply to: Is adhdonline.com legit? #195977
    onaverylongpath
    Participant

    Bump on this. After my very expensive evaluation failed (I got told it was just bipolar) I saw their site too, but it also feels scammy or like “ADHD urgent care” and no one else would take their opinion seriously.

    For Penny Williams, what makes you say “it’s legitimate”? Have you heard patient testimonials? Some kind of industry news? Just a feeling?

    onaverylongpath
    Participant

    Hi Beheadedio!

    Thank you for sharing your experience.

    Last time I called doctors in the area they all wanted a diagnosis (hence the neurologist) before even talking about ADHD. Is there a way around that or do I just widen the net? What do I ask about on the phone to get in the door?

    Do people react differently if I loudly declare I’m not interested in stimulant medication?

Viewing 14 posts - 1 through 14 (of 14 total)