My Forum Comments
Hi wandering away.
She sounds fishy to me-certainly enough that I wouldn’t want to keep her as my psychiatrist.
I’m really curious about the “needing to take a drug test” thing. I hope some other readers will respond regarding that.
I never had that happen in three times of requesting ADHD meds from a psych.
But the first time I was diagnosed by a doctor, I was 50-and amazingly, she was a psychiatrist who had, 50 years before, been
the general practitioner who “birthed” me! So, she kind of felt like she really knew me.
Later, my ADHD was “on the charts” so to speak. So even though I had been on and off ADHD meds, I guess the psychiatrists I worked with believed I definitely had ADHD and had an idea of the med that worked for me, (Vyvanse).
I have gone through dealing with a few who don’t seem to believe I should get stimulants. Once was because I was having
a problem with alcohol. Even though I went through detox, and had been sober for 6 months, one doctor said, “Let’s wait and see if you’re still sober three months from now.”
You don’t want to know the things I have called her in my head, but maybe you can guess.
And there was this one, at the county mental health clinic, who tried to give me the same crap your psychiatrist gave you,
saying I shouldn’t need ADHD drugs if I wasn’t working or attending school. Even though, like you, I told the doctor my ADHD was what was keeping me from having a job. I lasted two Zoom sessions with her. Screw that attitude.
ADHD affects EVERYTHING in your life-at least, it does for a lot of us. I have a long-suffering boyfriend of eleven years
who is REALLY glad I finally found a psychiatrist who listens, understands my ADHD symptoms, and prescribes me what I need.
He is stuck at home with me, and now he HAS to work at home, thanks to Covid. I can be nearly unbearable to be with if
NOT on Vyvanse.
I found a great psychiatrist after much searching. She was advertised online on Psychology Today. I have since been told by others that this is a good place to find a psych. I would suggest you keep looking and never forget how much you know ADHD affects you. Others can’t live in your skin. They simply can’t know. Don’t be afraid to stand up for yourself. Good luck!
I’m not sure what you mean about “connections”.
But I just had to respond to the question about what excites me about spring. It’s a small thing,
but important to me.
To me, spring begins the moment I smell and feel the Chinook winds rolling down the
Colorado mountains , over the western flats of Kansas, and into eastern Kansas City, my home.
And then, even though I am home, the Chinook winds make me yearn to take off and explore the world out there.
Hi, and welcome to ADDitude!
I definitely think you’re in the right place.
I say, go for it! If you think you see several signs of ADHD in yourself, it’s worth checking into.
Personally, I put very little stock in the dated view that to really have ADHD, you must have shown the signs from childhood. Lots of times the signs are just overlooked. I have also heard that some researchers believe some people with ADHD do not show signs of it until they start to enter their difficult teen-age years. That was certainly me. At least, I know that as I entered puberty, I switched from being a seemingly mature, great student, to being an impulsive, thrill-seeking wild child.
Some researchers are, I believe, even beginning to question the view that ADHD mustt have begun in childhood or adolescence. ADHD research has been forging ahead in leaps and bounds in the last 25 years or so, and I don’t think a serious psychiatrist or psychologist who understands ADHD would rule out an ADHD diagnosis in a person just because they can’t prove that the syndrome began in their childhood.
Also, I understand what you are saying about being a very good student, and that you enjoy studying, but listen, that is really very common, I think, among those of us with ADHD. I have read many people’s postings on this site that reflect their love of studying, of school, their ease in school settings, their great academic accomplishments…and yet they have trouble keeping simple or complex jobs. Work situations are very different than academic settings.
I have two Master’s degrees, and most of a third one-which I didn’t complete only because I got irrationally angry at the faculty and told them where to go. But I have been “let go”, and quit, several job positions over the years that were simple types, such as cashier, customer service, baker because I just couldn’t be consistent or on time…or lots of reasons!
I’ve also been very successful in a handful of jobs for years-but only because I loved the work I was doing AND I had a secretary to “handle” me and keep me straight and “on task”. (I hate that phrase, “on task”).
I was not diagnosed until I was 50. I seem to learn new things about ADHD…and myself, everyday.
If you think you are, you may well be. Try to find out and keep on advocating for yourself!
I have no idea what they mean. I’ve been active on this site for a year. At first, when I asked a question, or responded to a question-maybe both-I tried to fill out the “topic tags”. I think I stopped doing that when I realized that no matter what tags I put on a posting, I couldn’t see a difference as to where/how that posting showed up.
I made a guess that they were there for the editor(s)-to help in sorting out where postings might be relevant in different discussions. Poor grammar there, but…maybe you get my point.
Basically, I’m curious as to the answer to your question also, just not as curious as you are!
That sucks that you’ve had to wait so long for ADHD medication, and now, you’re still not seeing results!
I’m on Vyvanse, 40 mg, doing pretty well, only wanting to up it, as I was at 70 mg some years ago, and that worked well for me.
I had to look up Elvanse. I didn’t realize it is the brand name for Vyvanse.
I wanted to see if you were put on stimulants or a methylphenidate, but now I see you’ve been on both, because Xaggitin XL is a methylphenidate, whereas Vyvanse is a stimulant. So, this helped me untangle some info, but it won’t help you much.
See, as it is a stimulant, I would think that you would respond immediately to Vyvanse. Certainly you would after being on it a month. Unless you are one of the group of people who respond much better to methylphenidates-but that is what your Xaggitin XL was. And after 7 weeks of the highest dose of Xaggitin XL, it seems you should have seen a response.
In other words, I don’t know what to tell you. Possibly a methylphenidate AND a stimulant, combined, would work? But I am in no medical field, so I don’t know that answer. Most people w/ADHD respond better to either stimulants OR methylphenidates.
Your symptoms certainly sound like ADHD, but I suppose it’s possible you could have been wrongly diagnosed. I just don’t think it’s likely. But ADHD isn’t a diagnose anyone can “prove”, like a blood test can prove you have certain medical problems, so I guess a wrong diagnosis is always a possibility.
Have you looked into therapy our counseling? I have realized that even with my meds, I’m going to need some counseling help to address long-standing effects of guilt. shame, etc. I still see a hard road ahead of me-but at least I have optimism thanks to actually being able to wake up in the mornings, for the first time in years. Counseling could very well help whether or not you have ADHD.
Also, I would suggest reading the many blogs here on the ADDitude website about medication, and also about possible cognitive-behavioral approaches to your problems of concentration, disorganization, and motivation.
Personally, I find motivation to be my biggest obstacle.
Good Luck, don’t lose heart. Keep posting and reaching out.
Thank you all for the postings.
They have given me some new thoughts on a problem of mine-staying awake.
I’m not on Adderall; I’m on Vyvanse, (again, as I need to be), and it’s only my second month back on it, after unhappily being off it for about two years. I was on 20 mg last month, 40 mg now. At some point, it may go up, as my best dose some years ago was at 60 mg; we’ll see.
I have always been sleepy-able to fall asleep anywhere, at anytime, including driving or while stopped at a stop light.
Though I had a lot less problem falling asleep in traffic when I was on Vyvanse for eight years. It was easier to stay
The biggest thing Vyvanse has done for me lately is it immediately allows me to “WAKE UP” in the mornings. I sleep-a lot-about ten hours a day lately, and quite honestly, if I didn’t force myself to get out of bed, I could go right back to sleep for even longer. But now that I’m on Vyvanse again, I can take my med half an hour or so before the time I really NEED to be awake, and once I’m out of the bed, it’s like someone has switched an “ON” switch in my brain. I can speak coherently, sing a nonsense song to my chinchillas, and go start the daily, (boring), chores.
Before I got back on Vyvanse, I would sleep eight to ten hours a night, but even when I forced myself out of bed in the (late) morning, I would have “brain fog” and sleepiness till 3 pm or so. Obviously, my best time has always been from about 1 pm to 3 am.
I’ve been worried lately, because even with the Vyvanse, although it wakes me up, I still could sleep the day away easily, and I don’t seem really refreshed in the mornings.
I did have Covid back in the late Fall, and I actually keep kind of forgetting that because my symptoms were really mild, and I was only sick about a week.
Now I’m thinking that my need for tons of sleep every day may actually be a ‘fall-out’ symptom from the Covid. It makes sense, as the need for sleep has definitely escalated in the past few months.
Re-reading this, I can tell that I am already way sleepier than I should be. So-apologies for the somewhat incoherent posting. And thanks for bringing the possible “Covid Fatigue Fall-Out” to my attention!January 20, 2021 at 3:30 am in reply to: Adult ADHD Volunteers for my thesis research in Interior design #192213
Even people with a lot in common, like us ADDitude readers/contributors, have so many differences.
For instance, I think this sounds like a project that could reveal a lot of needed information about ADHD/Environmental Design. Personally, I do have Social Anxiety as well as my ADHD, and I feel there are many, many places I don’t want to be in or go to-but for reasons of ADHD issues, not just my Social Anxiety issues.
I abhor shopping malls-the noises, the people , the crowds, the “falseness” of it. Or I guess “artificiality” of it.
There are tons of work environments I would never work in: one of the worst would be an office with all those cubbies
in them, where people have to work close by each other, even though you can hear practically everything going on, and
employee are divided only by flimsy, moveable walls. I’d go crazy. I’d shoot myself first.
I’d love to work in an office environment that brought in natural, living things like plants, even trees, and some smallish animals and/or an aquarium. Give me a guinea pig or two in the workplace, or a bonded chinchilla couple, and I’d go to work all excited just to be able to check in with them every day at break times.
Music would be great too. Just…who gets to decide exactly what music, right?
If you still need volunteers, Antara, feel free to contact me at: firstname.lastname@example.org. Love to help you!January 20, 2021 at 2:52 am in reply to: Writing a dairy in order to study my lessons and help my self #192211
When I can manage to clean up my room, or office space or the whole house, (yeah, right), I feel a lot better too. For those of us with “cluttered” minds, it can help to toss out all the unneeded stuff. Sometimes they are just big distractions waiting to happen.
Good Luck with discovering if you have ADHD or not. There should be someone you can talk with. Have you tried taking one of the ADDitude “symptoms of ADHD” quizzes? They can give you some indication.
Don’t expect too much of yourself. If you really do have ADHD, you have got a lot of challenges ahead of you-and many of them are challenges you will have to be addressing all your life. They can’t just disappear.
For instance, if you are a procrastinator, you can’t just “fix” that. It’s something you have to work at in a variety of ways, over time.
Hope things go well for you…you sound determined!
I read your posting on the 9th, I think, and I immediately wanted to write back. But I always write too much, and I owe an ADHD friend of mine in North Carolina a letter, so I’ll be shorter than usual/ I identify with you in so many ways. Vyvanse is also my preferred drug and it works wonderfully but is crazy expensive!
I do this: type in ‘Vyvanse Coupon’ in your phone/laptop/whatever. You’ll immediately pull up sites where you can
get a coupon for a significant amount off of Vyvanse- I believe the coupon for $60 is the best you can get. I think.
Scan the coupon into your phone, unless you are really like me
and keep a cheap flip phone w/out Internet, in which case you just run off the coupon on a printer, (even if you have to use one at FedEx, you can always find a printer, right)? Take it to your pharmacist and they can scan the coupon code into their computer, and you can get $60 off your Vyvanse for at least six months in a row. If you do this, I would go ahead and keep a copy of the coupon with you when you get your meds every month. Occasionally, I’ve had a situation where a pharmacist intern scanned and used the code, but forgot to enter it for me so I’d have it for the next five months also.
I just re-started my Vyvanse-THANKS, UNIVERSE!-so I am back to the lowest dose-20 mg, even though I had been on the higher dose of 70 mg a few years ago. This coming month, my psych and I plan to up it to 30 mg, and I anticipate upping the dose to 50 mg a day before too many months go by.
The reason I’m mentioning that is two-fold.
(1):It doesn’t matter what dose you are taking, the coupon will cover $60 off the prescription if your insurance won’t cover it, and every monthly dose is super expensive…mine at only 20 mg was going to cost me $310, so I ended up paying $250. Still too much…and
(2) You can then write to the Vyvanse people at the Shire Pharmaceutical Company. Explain to them that you’ve used their product, you really like it, it works great for you, but because of your moving, job situation, poor insurance, etc. there is no way you can afford to buy it, and would they please send a ‘Shires Cares’ card to you? You will need to have a note from your doctor/psychiatrist stating that yes, they want to prescribe Vyvanse for you, and some proof of your income. There are different ways, easy ways of “proving” your income-because I haven’t worked in three plus years, I simply have my boyfriend type up a paper for me that basically says, yes, I am low, low income, and he supports me.
When I did this about a year ago, I got a plastic ‘Vyvanse Cares’ card in about a month-which I think, is worth a year of free Vyvanse-just show your card at the pharmacy every month when you pick up Vyvanse!
As soon as I ZOOM with my psychiatrist on the 28th of this month, I’ll be doing the same to get my card. I do have an old ‘Shire Cares’ card in my wallet right now from over a year ago…but it’s proof they really work! This is my lovely new psychiatrist, so I need to ask her for her ‘letter of support’ so I can, again, get free Vyvanse.
Oh…you can reach the right website for the Shire Cares card by just typing ‘Shire Cares’ into your phone/laptop!
See, what I mean about me typing too much info?
I’ll be thinking of you. My boyfriend works for CarMax. Also on the phone all day, also no commission, also now having to work from home because of Covid, also hates his job and never gets out anymore AT ALL,( because he kindly lets me go do all the shopping).. I would drown too, if I had to be home all day, every day. Even one day home ALL day can throw me for a loop.
Best to you!!
Wow. To me. it is so incredible that you have done so well with your children.
Diagnosis: SELFISHNESS?? How dare they??.
Oh my Lord. Thank goodness you hung in there to support the child you realized was struggling to do his best. As the phrase pops up on the ADDitude website:
“Your child is not trying to give you a hard time. Your child is HAVING a hard time”.
Kudos to your whole family for hanging in there to find effective solutions to problems and for trusting your knowledge of your own dear child, (now, at 17, nearly grown!)
Hi. Four years later…but I figure our problems always keep coming ’round, no matter what year it is.
I also thought that “The Depression Cure” was a great book. It’s been a couple of years since I read it, and I’m sure it’s around here somewhere.
I feel like Ilardi’s “plan of life”, (my description of the book’s advice), would probably significantly lessen depression in most people who really attempted to follow all the advice.
In some way, many of the book’s ideas are the same we’ve all no doubt heard: daily exercise, good nutrition, good sleep, connecting with others in positive ways, and an emphasis on the importance of being outside, and Vitamin D, and I think, Fish oil, or Vitamin E, in our diets. I may have forgotten one or two other suggestions he had, for lessening depression.
One way in which Ilardi differs from any run-of-the-mill primer on kicking depression is a wonderful commentary on “rumination”. That’s the endless negative thought loops that our brains tend to get stuck in.
Ilardi cautions that if we can’t learn to train our brain away from ruminating, we may be able to adopt all other good habits…and still be depressed. It is THAT important that we train our brain away from obsessive negativity, even though it can be very difficult to do. I also thought the book was well written, and easy to read.
Ilardi is, or was, a professor at KU, in Lawrence, KS, which is just down the road from me, and is the home of both my former and current psychiatrists. I should now say, “Go, Jayhawks!” because Lawrence is a lovely and well-loved little college town.
But…seeing as I got most of my Bachelor’s AND my Master’s degrees at Kansas State University in bucolic Manhattan, Kansas, I have to instead say, “Go Wildcats!”
I actually have a solid, loving relationship w/my boyfriend/common-law husband of eleven years. I am the off-the-wall ADHD person, who can’t be on time, keep a job, keep a house clean, or keep records-such as taxes. My ADHD is unmanaged at the moment, but I have had nine years, managed well w/Vyvanse, during the major part of our relationship, and only lost my meds because my psychiatrist AND my general practitioner retired two years ago. As my boyfriend would say, “It’s all been downhill since then”.
I’ve finally found a good psychiatrist who seems willing and ready to give me my meds again. Our first real appointment is New Year’s Eve, and the prospect of finally getting again what I’ve needed for two years, is very exciting.
Ok, honestly, I don’t know why my partner puts up with me.
I am messy, incredibly forgetful, always late, always too loud and dropping things, lose anything and everything, and our main interests in life are very different.
I think the biggest negative has been that ever since I stopped Vyvanse, I haven’t been able to keep a job. And, more and more, we NEED that income. But we have a very sincere and strong love: we have been through a LOT in the past eleven years.
I don’t understand how HE can believe I am so challenged by a neurological disorder that can wreak so much havoc, when I can hardly believe it myself!
I have high hopes for being able to search and find a job once the Vyvanse kicks in. I need that for my self-esteem, as well as our income. Even more, I need to be contributing to our relationship and to the world, in general.
My partner certainly has his issues that are serious, and unending also, and I readily put up with that. So, I guess that, with lots of love, makes it work out.
Things may or may not work out for you guys, but at least you have a “heads up” on what your problems may be. That’s more than a lot of couples have, as they go into partnerships with blinders on. I certainly would not rush into a committed relationship though. Your boyfriend can’t be “fixed” to be a neurotypical mate, but there is a lot of hope for him “improving” in his areas of concern.
And of course, there are all the good things about ADHD that you can read about in the ADDitude blogs. I’m not discounting that good stuff.
It’s simply that, in my life so far, the negatives have tended to outweigh the positives in ADHD. I guess I’m not evolved enough yet. What the heck, what’s another 60 years?
Whatever your son is interested in, you two can create a hobby around it.
Planes, rocks, fish, Native American culture, WW II, sports cars, fossils, dinosaurs, music, other cultures..it just is infinite the interests he might have that he can start learning more about. Are you familiar with the hardback Time Life series of books for children? These somewhat oversize books with amazing pictures all focus on one subject per book.
The amount of information they contain is astounding, and the bulk of it is pictures. So even if your son isn’t into reading, he would be entertained by the pictures alone. Some of the ones I’ve seen that might pique the interest of a ten year old boy:
Submarines, Martial Arts, Spies and Spying, Any type of Sports, Magic and Magicians…
Your local library should have access to many of these through inter-library loan.
They are a bit pricey to just buy at a local bookstore or online, but if you have a second hand bookstore, you might find some incredibly inexpensive. I have found several “like new” at our local Half-Price Bookstores, in the CLEARANCE section, for just $2.00.
They are so cool that adults often get into them as much as a child would. The information they offer on any subject contains enough to cover interests of a four year old, (pictures!), to a high school student, and beyond.
If your son begins to have the “collecting bug”, he could collect items around his interest…figures, books, you tube videos, songs, pictures, online articles. If he becomes interested in something in nature, like rocks, minerals, trees, insects, or gardening, then you really have it made. He can actually go outside and find the things he’s interested in, and learn how to label and store them.
There may very well be collector’s groups online that he could join to further his interest.
If he has any of that ADHD oh-so-typical “hyperfocus” going on, take advantage of it!
just thoughts from a
I never had a child with ADHD, but I am 60, and have a child without ADHD, who is 33. Oh…I myself, have severe ADHD.
This is a tough question, because your guy is only 10, but he’s approaching the dreaded “middle school age”.
I know he’s young, but I would give a great deal of consideration to what HE wants to do. He may not be sure yet what he wants. Can you guys visit both schools a couple of times, to get a better feel for them?
Maybe have a family meeting or two about the decision? Listing the positives and negatives.
I do think it’s very normal for your son to rebel about some of his homework. How many of us really liked all the subjects and assignments while we were in school?
I think it’s wonderful that you have both worked out homeschooling, and that he was able to thrive in that situation, but I tend to agree about your decision to move him back into a school environment next year. The social adjustment to others his age is so important, and often kids with ADHD have a hard time socially anyway.
Personally, I think I would tend toward trying him in a micro school environment next year, and changing that if you need to later. It might be good to have the homeschooling, which he is used to, for some days in the week.
Those are just a few thoughts of mine about your situation.
I’d be very interested to find out his desires, hopes and fears about the next school