My Forum Comments
My son (8.5 yo) takes FocalinXR (Dexmethylphenidate) in the AM, and Intuniv (guanfacine) in the evenings to help with his emotional dysregulation, anxiety/mild depression, and for additional impulse control. We too felt like there was something lacking with the stimulant alone; like it was helping a lot with focus but that something was missing in terms of his emotional wellness. Plus he wasn’t sleeping at night without melatonin. The addition of the guanfacine to our son’s regimen has helped tremendously.
Intuniv and Strattera are both anti-depressants which, according to our pediatric psychiatrist, both sucked as anti-depressants for neurotypical people, but do wonders for ADHD brains. If your doc recommends it, I would definitely give it a shot. Just keep in mind that as a non-stimulant med, it can take up to 2 weeks to see the full results, and then you can’t just stop it right away, he’d have to be weaned off.
If the child has an audiological deficit, have the parents considered getting him a hearing aid? One that’s inconspicuous and fits well within the ear so that he can hear without having to stress about visibility? Also, I don’t know if it would help, but I just got a new pair of Samsung Galaxy Buds that are Bluetooth/wireless; they have an Ambient Mode setting that allows you to have them in but still hear ambient noise, as well as turn on a feature that makes voices heard more clearly than the surrounding background noise. Maybe he could try something like that as well? I’d still go with the hearing aid option though, since he’ll probably need this accommodation well beyond high school.September 11, 2019 at 1:16 pm in reply to: Son with sever Adhd, developentally delayed and sensory issues #127316
I did a search for “sensory friendly soap” and found this. I hope this can help, or at least lead you in the right direction of what products to look out for. Everything I found when looking for “lather free soap” or “soap that doesn’t lather” kept bringing me to soaps with high concentrations of oils, and no sulfates (sodium lauryl/laureth sulfate apparently is what’s added to create richer lathers in store bought products). Dr Bonner’s came up a couple of times, as did lots of suggestions for goats milk soaps.
Best of luck in your search!
I truly think that’s the hardest part of dealing with all of this; having to watch as our kids struggle. The best thing you can do is definitely discuss the changes with your pedi at his next med review (which reminds me, I need to schedule that for my boy!). We switched his dose after the 2nd month, after explaining what we and his teachers noticed in his overall behavior. Even though he’s starting to struggle again now, he’s still infinitely better than he was without meds, so that’s a bonus. 😊 Have you thought about trying a different form of methylphenidate instead of doubling his dose? Is there a way to increase his dose by only 5mg instead of 10? Unfortunately trial and error is really the only way we can determine what works, and sometimes there’s a lot of it (and all that comes with it) before we figure it out. Can your son adequately explain how he’s feeling with or without his meds? This information can prove invaluable at a med review. My son is a poor communicator so it’s extremely difficult to get a straight answer out of him when asking him about it, so it’s almost like starting at square one everytime we talk about how things are going w/the doc. One minute the dose is too much and he wants to go back to what we know doesn’t work, then it’s wearing off too fast and he wants a bumper dose for the afternoons (even though his worst times are first thing in the morning), then he wants to try something else…it’s maddening. Haha
Following; my 54lb 7yo started on 18mg Concerta (methylphenidate extended release) and we upped his dose to 27mg almost 2 months ago. Was doing great until about 3 weeks ago when his teacher started noticing he was beginning to struggle with focusing again, particularly in the mornings, and his impulse control was starting to deteriorate. I’m wondering if we should bump him up again to 36mg or if we should ride it out another month in the off chance that we got a “bad batch”, if you will (as it coincides with his last scrip refill).