My Forum Comments
Yes I have had the same problem for years.
Sometimes I stay up till 4am, sleep for 3-4 hours and function perfectly fine the next day.
Other times I sleep for longer than usual and find my self exhausted the next day.
My brain does the opposite of a neurotypical brain.
I’m on a waiting list and hoping for a miracle med that will fix my problem. I’m really worried about side effects, even more so after reading your comment.
Could the drug be interacting with the contraceptive pill you are taking?
Maybe you need a diff Med/ dose ?
That’s my life exactly! I was referred to a specialist about 11 months go, on a very long waiting list. Yes I think hormonal changes make me worse, I don’t do stress or boredom.
Only ever been prescribed antidepressants, tried every one! They do not work for adhd. I want to try a stimulant drug to see if it makes a difference.
Consult your doctor if you think the med / dosage doesn’t suit you, there will be a bit of trial and error involved before you get the right meds. Hope that helps x
I’ve tried every ssri and snri, same problem with both types.
I am on a waiting list, GP wrote to the clinic to see if they could see me sooner, the answer was NO.
I don’t think they carry out assessments here, GPS in general don’t seem to recognise the signs, I’ve spoken to so many over the years, they look at me like im a freak, I’ve experienced condescending behaviour from them, they must think I create my own dramas
- This reply was modified 9 months ago by Sam k.
Gillycol I am also in Yorkshire and been referred to clinic in Wakefield, I have phoned twice they can’t say how long the wait is. I tried not depressants again but they make some of the symptoms worse. I’m surprised my Gp prescribed sertraline for the anxiety. I feel over whelming grief as it has taken them 25 years to figure this out
I came across disturbed sleep patterns in Babies who are later diagnosed with adhd (on this site)
August 24, 2019 at 10:32 pm in reply to: Freshly diagnosed – I'm not sure what to think or what it means #126400
I’m sort of in the same boat minus drugs and alcohol. I have been referred to an adhd specialist here in the UK, finally after 25 years of trying every antidepressant going. I only took them for a few weeks as they made some of my symptoms worse.
I am on a “very long waiting list” , which is decanting as it means I can’t get the help that I need quickly enough.
Stimulant are my last chance at trying to fix my brain. I don’t know why I can’t get on with my life, everyday is difficult, due to the emotional ups and downs, moodswings, procrastination, excessive daydreaming, social anxiety, depression, I even talk to myself and pace all over the house. It’s hell and I seriously hope they can fix it. I’m 40 now and feel despair as I haven’t reached my full potential, I’m way behind my peers, socially, emotionally and professionally. I have so many qualifications which I can’t put to use because of all the symptoms.
I would say to you don’t worry about the diagnosis, it’s not your fault your Brain is like this, adhd is a neuro developmental disorder, It isn’t actually a psychiatric disorder. Speak to the specialist and see what your options are, if you don’t want to try meds then CBT might be helpful. If you are worried you might abuse the drug, tell them that,see how they can help. if you can find a support group in your area, get in touch with them, it’s easier to talk to people with the same problem.
I am currently on a waiting list to see an ADHD specialist after 25 years they finally nailed it. I am 40 years of age and never had a full time job with a full salary and now I understand why. It was the social anxiety, mood and motivation which made it difficult for me to get comfortable in the workplace with my colleagues. Also in adhd brains there is a split between knowledge and performance, so we have trouble retaining and recalling information. I have dropped out of college and university, started over again, chopped and changed courses. In some cases I never completed what I started, gained mediocre grades or failed altogether.
I have a degree which I haven’t put to use either.
The only time I managed to earn a steady income was when I had my own beauty business, I worked from home mainly and did the odd mobile booking. But even with the business, I found my self downsizing it instead of expanding it because I couldn’t cope. I also struggled with book keeping and money management. I closed earlier this year as I couldn’t cope anymore.
Have you considered self employment, are you able to offer any of your skills to others? Running your own business will give you freedom
And flexibility, it may not provide a steady income to start with but it might be worth a try.
Hope that helpsx
Here’s a link from this website regarding foods to eat/avoid. There are many more articles about diet on here, just type into search box.
Anxiety is a symptom (generalised and/ or social) in adhd.
Some stimulants can make the anxiety worse, as a result some people are prescribed an anti depressant along with the stimulant drug.
I think you need to change your meds, speak to your doctor about it.
Good luck, hang in there, you are getting help early on, that’s one good thing, I’m 40 , some people are much older when they finally get a diagnosis. My advice to you would be to speak to other people with adhd about your difficulties. Don’t bother with neurotypicals they don’t get it. Find a support group in your area, or start one if there isn’t one already. You could always do this anonymously on media. When I get an official diagnosis I’m going to join a group.
Also write down all the difficulties you face on a daily basis and next to it how you are going to manage it (you could make 2 columns on a sheet of paper ) Meds will not provide 100% relief so the rest is down to CBT and making changes in your everyday life, you have to learn to manage this, don’t let it define you. Hope all that helps 😊
Is Adderall a stimulant drug, maybe you need a different type of stimulant, there will be a bit of trial and error involved before you find one that works for you.
Hi I was referred to an adhd specialist here in the Uk last October, I’ve been told I’m on a very long waiting list.
I have tried every antidepressant going, those drugs DO NOT work on adhd, when prescribed alone, so you are right not to take them.
My obsession is also food, anything and everything to do with food, I wonder if that’s a bit autism in me as narrowed interests are one of the signs. Addictive behaviour is also a symptom of adhd, I have a tea addiction, I literally can’t get through the day without endless cups, loaded with sugar which is bad for people like us! My excessive sugar intake has raised my blood sugar and left me with a load of belly fat. I am not working at the moment which doesn’t help, as I graze throughout the day, countless trips to the kitchen, I think that’s what’s causing my reflux. I’m not sure if it’s boredom or maybe a comfort thing, it could even be a symptom of adhd, maybe some malfunction in the Brain is causing us to over eat.
I know the overwhelming despair that comes with adhd, I wish I could be normal, I’m half he person I should be. I desperately need stimulant drugs, which may not be prescribed to me as I have stage 2 kidney disease. Trouble with Drugs is side effects, one of them bring weight gain, another is anxiety, so most likely I will be prescribed an antidepressant to cope with that. Anxiety in itself as you will know is a massive part of adhd.
So sorry just saw this now. I can’t afford private treatment. Saw the doctor last week he wanted a letter from the psychologist who assessed me, seeing him again this week, hoping he can prescribe something, either a tricyclics antidepressant or anti anxiety drug. There must be something I can take to ease the crippling symptoms.
Here are the difficulties I have on a daily basis, had them all my life and gotten worse with age.
Excessive day dreaming
Talking to myself
Bouts of anxiety and depression
mood swings anger, rage , jealousy
Black and white thinking (splitting/ extreme indecisiveness
Inability to cope with stress – everyday interactions and activities make me stressed
Althoguh I am not a people person I am still a people pleaser in person but can be quite two faced (I have to be honest here )
More likely to have a slanging match via text than a face to face confrontation .
Tend to avoid social situations
Aggressive as I don’t know how to assert myself- burn bridges over perceived slight
Can’t concentrate, distracted easily, low threshold for boredom
Take things the wrong way, Mis read texts, misunderstand simple things
Feel disorientated and confused especially when out of the home
I stare at people for some reason🤦♀️ I am always looking a round at everyonE and notice every little thing
Extremely low self esteem, lack confidence, hate myself most days
Feel inferior and inadequate
Can’t get things done, no matter how hard I try
If I try to read never get past the first page, haven’t read a book since I was a teen, words don’t sink in. Cognition is impaired. University was extremely stressful
Every day life is extremely stressful
Hate being told what to do makes me mad
Hormonal changes make me worse,mensturation and pregnancy very difficult, it makes all the symptoms worse
Living a simple life helps me,I only interact with people when I have to, it’s not the way I want to be though, want to be a sociable, go getter, trail blazer the adhd doesn’t allow me to☹️
I can’t be the wife or mother I want to be.
It’s devastating and what gets me is very few people understand adhd, I don’t feel comfortable talking to people about it. I need to find a support group
I have the ability to earn a very good salary working for someone else but I am working from home and earning a pittance. In the past I have applied for jobs below my skill level
I always felt hemmed in at work (beofre self employment) I got pushed around by colleagues
I prefer 1 to 1 interactions
Hate being in a group situation especially with other women and strangers
My current job is part time, weekend and holidays so I have week days to do absolutely nothing! A lot of time is wasted procrastinating, talking to myself whilst pacing all over the house
One thing you can do to manage your everyday living is to SIMPLIFY your life, cut out unnecesary contact with people on media, if viable reduce your work hours, make lists, keep a diary, delegate jobs to your family so you aren’t trying to do everything yourself, learn to say NO to others. Eat a healthy balanced diet,get to bed on time, leave your phone outside your bedroom on the landing, so you aren’t tempted to surf the net at night, reduce or cut our added sugars and caffeine, if you have any vitamin deficiencies, take a supplement, exercise, find a green space (garden, park, hiking trail) calms your mind
On a sheet of paper draw a line down centre, in 1 column write all the things which make your symptoms worse and in the other everything that makes you feel better
Hope this all helps
Hi road runner
Every single word you wrote resonates with me so don’t despair you are not alone.
I am living in the UK and was just assessed in October 2018 ( turned 40 Dec 2018). The psychologist referred me to an ADHD specialist. I am now on a very long waiting list which is so frustrating.
I have had problems since I was a child, zoning out was the first thing I recall, I never played with the other kids, I either tagged along or just had a single friend, I actually struggled to maintain friendships throughout my life and just burned bridges everywhere I went.
During my teens I started talking out loud to myself, my parents weren’t that educated and were passive parents, they didn’t take me to the doctor. Look up maladaptive day dreaming by Eli Somers, the talking ties in with excessive day dreaming which never stops. It’s like my brain is a tv and someone else has the remote control and is flicking through the channels.
In my mid teens I went to the doctor myself and told her I was depressed, she prescribed anti depressant, for years I tried every type of anti depressant going, I couldn’t stand the side effects and stopped taking them after a few weeks. I kept going back and telling them the drugs are not working so they would try me on a diff one.
I struggled academically and in the work place, I struggled to fit in, couldn’t hold down a job, was never comfortable with my peers, I realise now it’s social/ avoidant anxiety, which are all related to the adhd .
I have been round in circles with mental health, spokento many GPS, counsellors, psychologists, psychiatrist, went alone each time as I can’t trust my family and friends to keep their mouths shut. I have been given a diagnosis for chrinic depression, anxiety, paranoid personality disorder (the last one I refused to accept as it wasn’t a complete analysis, the psychiatrist just Homes in on that because I said I find it had to trust People).
You have to remember the diagnosis will depend on what the psychiatrist ASKs you and what You TELL them. If you say I’m depressed you will most likely end up with a diagnosis for that, Thai may not be curate as you may have a whole load of other symptoms which need to be addressed.
They all work differently too, some treat the symptoms, they don’t give you a label as one doctor said to me a diagnosis will impact your life greatly. Another diagnosed me in a matter of minutes ( with personality disorder).
The best thing to do is write down in clear bullet points what your every day problems are, so they can determine what’s going on. I did this and finally got the correct diagnosis, I sobbed when the psychologist said I think it’s adhd and Asd (mild autism, used to be called
essentially it’s a dopamine deficiency, I have only been treated for a serotonin deficiency with anti depressants. If you have a dopamine deficiency, anti deoressants will give you very little relief, they won’t stabilise the bulk of your symptoms. They did not work for me, I am thinking of trying an anti anxiety drug to help me with the generalised and social anxiety which I’ve had.
I’m a lot like you, I am not really a people person, I hate others popping round to my home, can’t stand having other people’s kids staying over at mine.
I have my own business haven’t been that successful as I delete my business pages from my social media , delete friends and the add them again, am short with clients at times.
I despair every day because I haven’t reached my full potential, i have done so many courses but haven’t really established myself, I am Jill of all trades, I’m way behind my peers career wise, socially and emotionally, I feel intense jealousy and rage, in fact I only ever feel neagtaive emotions and thoughts.
Sorry for the long winded reply I hope it offers some insight and comfort too x
Yes! I am in a waiting list for adhd / asd treatment.
I also think my problem is genetic and a precursor for dementia, my paternal grandmother had the same difficulties I have, she had dementia. My father is the same too, if he is diagnosed I will know for certain it is genetic. Not sure if there are any genetic tests available.