garvinjen

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  • in reply to: Adderall Xr not working #137686
    garvinjen
    Participant

    Howdy 🤠
    I just wanted to make a few comments in response to many of the comments on this thread.

    1) How many of you have had genetic testing done to see how YOUR body chemistry metabolizes medicine? They can pinpoint specific ADHD drug that work/don’t work with your own body chemistry! If a medication in the Aderall family doesn’t work and a Ritalin family does (or vice versa) you may actually have a genetic problem that interferes with the metabolism of that drug. After being tested and then being switched to Aderall based drugs, it was like night and day!

    2) If your Psychiatrist is not listening to you and continues to prescribe medicine that is not helping you achieve optimal results – GET A NEW DOCTOR!! My husband is a Psychiatrist, double board certified in Adult and Child/Adolescent psychiatry and would never tell someone to “drink coffee” or be unwilling to work with the patient on medication and dosages. A good physician is not a closed minded bigot! ADHD medication dosage changes are part of being on the medication for long periods of time, among other things, like weight, other medication, etc. A really good psychiatrist will not accept insurance, the compensation is not in line with the training, expertise and liability in most of the US. (source APA Dec or Jan 2020) In 11 states, a General practitioner is compensated 50% more than a psychiatrist (who also went to medical school but then spent many extra years training to specialize!) Why would you have faith in a Dr that gets $33 per 15 minute med check vs cash only psychiatrists? The manager of Starbucks earns more than the $33 psychiatrist. (an insurance company actually called my husband to offer this amount! He asked if the person calling would take $3/hr instead of what he was being paid!! LOL)

    3) Generic medicine is not as good as brand. Generics can vary from the label drug strengt up to 25% so a 20mg pill can actually be anywhere from 15 to 25mg!! Brand is much stricter and so you are more likely to get what you are supposed to. There are a lot of complaints about cerian generic manufacturers of ADHD drugs. Make note of the ones that don’t work for you and don’t get the prescription filled with inferior medication. Also make sure you complain about any manufacturer to the FDA – there are forms on their website.

    I hope that some of this info is helpful!

    garvinjen
    Participant

    Make sure y’all that are having side effects report it to the FDA I did!!
    I found the Prasco generic which is the new “Teva” to be the superior Gereric as most of y’all agree.

    in reply to: How often to Reevaluate #105419
    garvinjen
    Participant

    I’m not sure if this is the same for every state, but Texas requires that there be an evaluation every 3 years for school related accommodations/services.

    in reply to: Newly diagnosed #105142
    garvinjen
    Participant

    Why not ask for genetic testing for adhd drug efficacy? Some people have enzymes/genetic markers that show how that individual responds to adhd, antidepressant and pain medication to name a few. For example I was on concerta but needed an ever increasing dose to be helpful and come to find out that I have some genetic factor that makes me respond better to the adderal family. So switched to Adderall 30 XR and it works so much better! I also had to switch antidepressants for the same reason. it was night and day!

    in reply to: Vyvanse & Focalin #105141
    garvinjen
    Participant

    So let me ask you a question – if ADHD medication works well for the ADHD diagnosed kids (including college age kid) you’re mentioning here, why exactly would you plan/hope for them to one day quit taking the medication?

    Would you be thinking the same way about a diabetic and how people feel about their insulin? I mean why do people (who for the most part are totally ignorant to ADHD and how effective the stimulant medication is for those of us that use it) that have an uneducated opinion about the medication and diagnosis for that medication matter so much ? I mean you are posting in an environment where most people understand ADHD and are advocates for treating it in the way most beneficial to the patient.

    Or

    Would you hope for anyone wearing glassed or contacts to one day not wear them? They are not
    necessary for maintaining life, are a lot of timed made fun of – glasses are however very helpful and make life easier for those that use them, why not change your thinking about ADHD medication and promote wellbeing of the patient instead of succumbing to social ignorance and judgement.

    One last thought, 2 years is a long time for a growing child to be on the same dosage of medication. The efficacy most likely has diminished as your kiddos tolerance builds up and his body mass increases. You could ask about modifying the dosage and/or medication. Focalin xr is like giving 2.5 mg IR immediately then another 2.5mg about 3-4 hours later = 5mg Example 5mg xr m-f with no weekends, then 5mg xr daily, then switch either to Focalin 10mg xr with 5mg IR prn right after school or Concerta XR 18mg (like giving 3 doses instead of 2 with Focalin)
    My 2cents.
    NOTE: Above drug/dosage suggestions are not provided as medical advice instead they are just an example of how ADHD medications can be modified for long term use. I am not a Doctor and my opinions are based solely on my personal experience, knowledge as well as my professional (RN) knowledge/experience.

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