Household6toCrewof7

My Forum Comments

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  • in reply to: ADD and Narcolepsy as comorbid conditions? #58963
    Household6toCrewof7
    Participant

    A sleep study would be extremely beneficial if you are struggling. It took over 15yrs before someone listened enough & realized I wasn’t tired all the time because we have a bunch of kids. I would love to hear an update if/when you’re able to do a study!

    in reply to: ADD and Narcolepsy as comorbid conditions? #58962
    Household6toCrewof7
    Participant

    Oh! I should probably add that being on XR doses back to back isn’t the normal practice. (Or so ive been told…) I have to take XR doses because my body doesn’t absorb medication well. (Previous gastric sleeve surgery) On regular release doses I crash within 2 hours of taking the dose. :-/

    in reply to: ADD and Narcolepsy as comorbid conditions? #58960
    Household6toCrewof7
    Participant

    Thank you Catma!
    I am on Adderall XR 30mg in the morning and another 15mg around 2pm. I will mention that it really helps to set an alarm for about an hour before you want to wake up & take your morning dose. By the time your alarm goes off again, the meds have kicked in & mornings go a bit smoother. I am also on Ambien CR 6.25 at night to help achieve a REM at night instead of walking around in various stages of REM during the day. I will agree that not allowing myself enough sleep is my biggest issue. The only quiet/down time I get is after the kids go to bed, which is often later than I’d like.(I should probably mention I have 4 ADDers. 😉 )
    Thanks for sharing & letting me know I’m not an anomaly!

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