Abi

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  • in reply to: Difficulty Swallowing Capsule #65961
    Abi
    Participant

    Hi There,

    This is the link for the syrup, Quillivant XR. It’s just methylphenadate in fancy form lol We’ve had dosage adjustments and we’re still keeping an eye on the weight just like the original version, but so far anyway, it’s still working for us. I hope this helps you and your family 🙂

    https://www.rxlist.com/quillivant-xr-side-effects-drug-center.htm

    in reply to: Up and down. All over the place. #49603
    Abi
    Participant

    Hi there, I am very new to this journey and I’m not sure that I can offer any advice as such so mine is more of a “I hear you and am with you,” kind of a response. My daughter is six and homeschooled and though we pretty much knew for a long while that we were looking at ADHD, we only just sought out medical intervention. We opted to medicate too but now have a referral for behavioral health because yes, the ODD and impulsive behaviors are not things most people understand to be part of this condition. Your analogies about mountains and the wheels coming off are spot on. While I was seeking out help for my daughter, my doctor decided to refer me for behavioral health for myself and I wasn’t too impressed at the time, but honestly it’s probably going to be a game changer. My stress levels are insane (my husband adores our kiddo but tends to look to me to solve all ills too because he has PTSD and Aspergers and the consistency these kiddos need just isn’t there, so I hear you on that one too) and so the doctor has been trying to work on relaxation with me ahead of starting the behavioral therapy with my daughter. I think in truth, living with these kind of conditions is going to take so many approaches, isn’t it – are you able to access any of that for yourself or for your kiddo? Our pediatrician told us that the medication works best on the inattentiveness (and like you, we’re seeing good results there), but not so much on the impulsive behavior which is where the ODD and SPD’s responding better to behavioral health comes in. As I say, we are completely new to the treatment aspects of this and I am watching a building frustration and sometimes anger in my daughter too, so I am probably too new to offer you the ‘do this, try this’ approach that would probably be really helpful to you. But I can hand hold and commiserate and share all the things I learn along the way if you like? Hoping for the best of weekends for you mama.

    Abi
    Participant

    Thank You so much for responding with so much good advice and information – I know I have been horribly slow to say how much I appreciate your help, distracted child versus laptop = one more unanticipated expense. The way in which you’ve all described ADHD, it’s cause and impacts are absolutely perfect. I hope you won’t mind but I am going to use those to send a message to our families and friends, if they still choose to hang on to inaccurate beliefs then I’ll know it’s not something they’re willing to redress and will just ensure they’re not able to negatively impact my child’s perception of herself and her disorder. I think we’re fortunate in that she’s been diagnosed very early, without any hoops to jump through, so her self-esteem is completely unaffected so the idea that misinformed family will be the ones to dent it won’t be tolerated.

    I also appreciate the comments on multiple approached to treatment/mitigation of effects – my daughter was placed on medication as the doctor made a very good case for it but we now have our referral for behavioral therapy which I’m really hoping will help us all find tools for our arsenal. There is no shortage of love or tolerance in our house but yes, it is difficult to be the calm and peaceful parent I always wanted to be at times so hopefully, I can garner further insight on how to approach that. I love the idea that we might too be that family where my daughter’s ADHD catapults us into her happy kind of frenzy instead of the cool pool of calm that would undoubtedly be easier! We are the sum of our parts even as a family, right?

    I am truly thankful to you all for being so open with your experiences and offering such wise support – I cannot tell you how grateful I am. Wishing you all a very happy weekend!

    Abi
    Participant

    Wow, fantastic suggestions, thank you! I will absolutely seek those out. I’m not usually one to mind everyone weighing in with their comments and opinions, in fact I usually encourage it! And listening to other people’s experiences is an absolute must for pretty much every aspect of my life lol, but maybe it’s that I’m so unsure myself of how best to handle things, being told I am doing it all wrong is really cutting right now. I probably am, and I would love for someone to show me how to do it better, but I’m not sure the views of those who really don’t know what they’re talking about is really undermining. I am off to check out the library catalog for those titles, and I now have my evening reading pegged. Thank you so much, I really appreciate your time and opinion.

    in reply to: Difficulty Swallowing Capsule #47853
    Abi
    Participant

    Just in case anyone else stumbles into this thread because they’re having difficulty with swallowing – either the capsules or as in our case, even swallowing the apple sauce method, I wanted to post our solution in the hope he may help someone else. It turns out that our daughter’s swallowing difficulty is something that kids with Sensory Processing Disorders experience. Our doctor prescribed the same medication in a syrup and whaddya no, instant fix! I had no idea that an extended/delayed release could be given in a liquid, and a few pharmacists said the same! It’s expensive in comparison to the capsules so is usually reserved for kids at risk of discontinuing medication because of the swallowing issue, but if that describes your family and your insurance will cover it, I hope this tidbit helps.

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