November 6, 2018 at 1:35 pm #103288mama2twoParticipant
Hello. I’m new to this site and to the forum. Truth be told, I was so happy to find a board on which people posted about medication usage for their kiddos. I’ve been functioning in the dark for so long without having anyone in my real life who also has the incredibly challenging/frightening/heartbreaking task of assessing the risk/benefit of medicating their child without ever really knowing if there will be long-term harm.
Anyway…background, my son is 9.5. He’s been quirky his whole life. Whole, whole, whole. The list of specialists we’ve seen could bring you to your knees… but without getting lost in past details, last spring we finally hit rock-bottom with regard to his dx (severe GAD, OCD, ADHD, and borderline executive functioning weakness). He has always been very high achieving (gifted) academically and has had few behavior issues at school because he’s never met a rule he doesn’t love to follow when it’s put in place by anyone other than me or my husband. But at home, it was a different story. He was excessively moody, nasty, irrationally anxious, angry, argumentative just for the fun of it, impulsive, unable to wait for anything… it was not good.
At the time he was taking clonidine ER 0.1 mg twice a day and Luvox 125 mg once a day. Prior to this over the course of several years, we had tried zoloft without any help, intunive, clonidine NOT-ER, ritalin, adderall, and probably some other things. Nothing was really helping. Last spring with the guidance of a new psychiatrist, we took him off the Luvox since it seemed it wasn’t helping much… it was a HORRIFIC few months. Though it appeared the Luvox was ineffective, the reality of life without it was awful. His anxiety went through the roof and he started having significant school avoidance, when in school he had to leave the classroom to sit with the principal, etc, etc. But the psychiatrist had us introduce Risperdal at a low dose. Within a week of the Risperdal entering his system, he was like a new kid. It was amazing.
He was still having some anxiety issues though, so the doctor eventually also added cymbalta. His current regiment is clonidine ER 0.1 mg and cymbalta 40 mg once a day in the morning, and risperdal 0.5 mg once a day at night. His behavior is so much improved, his anxiety is much better managed than ever before…
BUT…the bed wetting.
It started within a month of starting the risperdal and has not let up. He was dry for years prior to this. We’ve tried an alarm. We’ve tried motivating his subconscious as recommended by his psychologist with reward charts, etc… nothing has helped and if anything, it’s worse. This past week he’s done nothing but obsess over whether he’s going to have an accident at night. He wakes up devastated each time it happens. He’s totally disheartened and dejected.
I have been raising this bed wetting at each psychiatry appt and the doctor kept telling me she was not familiar with this as a side effect and that she has had many patients over the years and this has never occurred. However, google tells me otherwise.
I have an appt to meet with her in a few weeks, but I’m not even sure what to do at this point. The medicine has helped his behavior and his attitude…but the peeing thing is really, really upsetting him (understandably).
Has anyone else had a child experience nighttime enuresis related to risperdone? Did it ever stop? If not, what did you do?
Thanks for reading all this.
November 22, 2018 at 6:33 am #1042151ChristineParticipant
My 15 year old daughter has daytime wetting, used to have encopresis (BM) and no medication has changed it. The encopresis subsided when she got her period. She is isolating herself because of odor. I had a traumatic injury from childbirth, so I blame myself, as I had a repair when she was 3 years old. She was aware that we both wore diapers, handing me mine in the restroom. She likes to be helpful. I was given medication as a result of a wrongful diagnosis, pretty sure respiridol, that made me sleep so hard that I wet my bedclothes. My suggestion to you is deal with one diagnosis at a time and get a sleep study ordered by the doctor. My experience has been multiple diagnosis, tons of medications, and I find less is best. Always trust your own judgement and enjoy learning your child. As far as the wetting, it’s very common in males and it is his own personal item not to be shared. I have found that ownership of a bodily function and allowing self-care is empowering to our children. My daughter’s wetting has been frustrating, my mother’s sage advice is that “it’s the only thing that she can control” in life. I’ve tried everything, but the easiest intervention is to whisper “wash up” and allow her to own the body, function, and care. I know a lot of makes that claim they wet the bed until puberty. No one talks about it. I am the mother of a 27 year old with Down Syndrome, bed wetting until 16. If you do the math, all 3 in diapers at the same time! Your insurance may send you incontinent supplies with a doctor authorization. It may encourage you to know that my sister skipped second grade, plays classical piano by ear, has her master’s degree, and recently admitted owning a small business is fulfilling for adults with ADD/ADHD. No medication was ever involved, times were different. She got herself a lot of therapy. I remember her struggles with “blurting out” inappropriate stuff, yet she learned her mind and developed lasting relationships.
December 31, 2020 at 9:10 am #190127DchesbizParticipant
Hi I realize this post is almost 2 years old but what did you end up doing? Your son sounds like my daughter. We have had bedwetting with guanfacine and clonidine. We don’t know what to do!
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