May 27, 2017 at 11:51 am #50410ElektraParticipant
My daughter is 14. She has most of the symptoms for NVL that I read on this site and others. But I don’t know what do now with this. It seems impossible or improbable to get a true diagnosis. Her psych-ed eval showed ADHD and slow processing, which I am reading might actually be NVL. She has suffered from anxiety most of her life, but it has exacerbated itself this past year, in 9th grade. She is really struggling and so are we.
How do I find a support from other parents going through this?
May 29, 2017 at 11:21 am #50440Penny WilliamsKeymaster
You are right, it’s very tough to get a diagnosis of NVLD (Non-Verbal Learning Disorder). When I had a new evaluation done for my son (because I knew he also had autism), I had asked the psychologist about NVLD, because those symptoms seem to overlap a great deal with autism. She said at the time (2014) that NVLD wasn’t an official diagnosis. A quick Google search reveals it’s still not in the Diagnostic and Statistical Manual (DSM-V), but it’s talked about as more of a “syndrome” when the label is applied to an individual.
So, that means you need to find a psychologist who knows about NVLD and will write a report addressing it, if he/she finds that your daughter meets the criteria for NVLD. Then you can share that with the school. The Smart Kids with Learning Disorders website offers a great list of the rating scales used to “diagnose” NVLD. You can look at the testing she’s already had done and see which components might be missing.
My son has slow processing as well. In fact, his IQ was in the 90something percentile, and his processing speed was 48% I believe (processing speed is measured in IQ tests, oddly). That differential between intelligence and processing speed is enormous, and very debilitating. One thing we’ve done to accommodate low processing speed is to get accommodations to reduce assignments and extended time on all assignments and tests. It’s written in his IEP, but you could have these in a 504 Plan if she doesn’t have an IEP.
Here are some common high school accommodations:
And, the more stressed our kids get at school, the worse their anxiety… and the worse their performance.
ADDitude Community Moderator, Author & Mentor on Parenting ADHD, Mom to teen w/ ADHD, LDs, and autism
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