Reply To: ADHD medication and family history of epilepsy

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#92587
joannestrawberry
Participant

Hi – I’m so happy that i found this thread.

My son is 10.5 and was diagnosed with ADHD about 6 months ago.

We think he has had it as far back as 4yrs old, based on his impulsivity and agression, and when we were about to diagnosed it (i believe) he had a horrid grand mal seizure (he was 8 at the time). This through us for a loop of course because no one has epilepsy in our families, and started us down a very difficult journey of treating epilepsy….. long story short, we were 18 months free of seizures when he was diagnosed with ADHD. We started a very low does of Ritalin and life really was beautiful until the seizures started coming back… and we had 4 this past summer, the most recent (and most terrible) was only 3 weeks ago. Through all of our new education we have learned that stimulants as you all probably know can lower the threshold in epilepstics. We are heartbroken becuase we were finally in a good, healthy, happy place and then the seizures. So now, we’ve increased the anti seizure meds and added CBD oil which i hope and pray is the miracle everyone says it is…. and just recently went back on his dose of Ritalin LA (10mgs). While behavior and life is better, we are petrified of another seizure because they have all happened in his sleep. We are trying to find a balance where life is positive and successful (managing ADHD), and he is not at risk for a seizure (which can be very very harmful). It’s basically a nightmare, but we have great drs and we trust them, and we read everything we can and are trying to find a balance. Ive been scouring the west trying to find other people who have ADHD and epilepsy…. apparently its common for kids to have both (like, 50% of epileptics have ADHD), but the meds do not work well together, they can make the othe rcondition worse. We need both conditions to be treated.

PLease, any help, advice, experience would be so, so helpful. I am trying to keep my head up, we’re awesome parents, i am trying to stay positive but so scared every night he will have another seizure because of the Ritalin.

Thanks