Hello liamsmat and thank you so much for sharing with me, it is a great help and source of comfort. You sound lime an amazing family and as Penny said above I am very lucky that both my son and his wife are handling the diagnosis and treatment plans for the kids well and doing their utmost to adapt to life with each of the boys issues and also my sons own situation.
I will follow up on the books and am so happy to have some recommended reading!!!
Wishing your and your family the very best and a big hug from a grateful granny xxx