|
I know how you feel..
I just went through all of this with my 8 yo daughter and I'm now noticing the same traits with my 5yo son.
Don't stop with just ADHD testing as most of it is by observation and questionnaires in which in my opinion does not help. The questionnaires and observations are in the person observing them opinion. As I've learned (the very hard and expensive way) that depending who you ask it will vary greatly.
I am a parent with ADD innattentive type and knew there was more than ADD/ADHD with my daughter. I was told told by a DEV. Peditrician she had AD/HD combined type and put her on meds. After 2 months of different med trials (all made no difference and made her high) I took her off and had a meeting with her teacher who then told me that (before the meds) she couldn't believe my daughter had AD/HD b/c most of the time she would be the only one paying atttention! She had been seeing a child Psychologist who diagnosed her with anxiety. I knew my daughter was frustrated but always though it was "secondary" and a result of something else.
From there I went on a mission and wrote down all the "symptoms" that my daughter had, even the most "minor" symptoms.
Symptoms of anxiety,frustration were broken down into "when" and "why's". Sleep monitioring, educational monitoring (my daughters teacher is awesome),playground observations (by me) etc. This went on for a long time until my frustration got the best of me. Finally I asked her what she thought. Surprising what an 8 yo can tell you if you ask. Her answers (I will randomly put them out for you to not make this too long). She said the everything was too "loud all the time", that "it's easier when I write down" the questions that I ask her, that she can't "concentrate with all the noise", that everyone needs to "slow down" and not rush her answers when she is asked questions. Her speech was filled with "um's, and aa's". Her handwriting with constant intervention would not improve (write past the margins, messy).She was still reversing db, pq, etc. but would sometimes catch herself doing it. She has always had sleep issues as well. The BIG issues was a new one that we saw this past Spring, she suddenly thought the birds were talking to her, which tore open a hole in my heart. It wasn't just a "child" playing and imagining, she TRULY believed it. At this point, I though there my be some hallucinations happening. This one point of "birds talking to her" is truly what set us up for the "correct" testing, Auditory.
The "frequencies" that my daughter hears and does not hear came into play. We learned she could hear "higher and Lower" frequentcies than the rest of us and sometimes couldn't hear certain frequencies at all. Being the "bird chips" drownded out all other noises she truly thought that they were speaking to her.
Then I looked at her "positives" which when put under observation looked like "coping skills".
It turns out she has CAPD or Central Auditory Processing Disorder along with Hypersensitive hearing. All of which effects many parts of her daily life, motor skills, processing, brain hearing etc.
We learned all of this through Dr.'s and clinicians who had no "opinion" and looked for "facts".
We did a full psychoeducational eval, brain mapping, TOVA, IOVA, and plain out listened to her, her friends, our friends, teachers, and followed my own instincts.
We are currently trying AIT training and and just "chilling out" on expectations. I fully explained the whole situation to my sweet girl who proudly tells her new friends (when she doesn't quite get the games they are playing or misses what they say) "can you repeat that" or "can you show me inteading of telling me", "because sometimes my brain can't hear". She has moved to the top of her class and has many, many friends now.
What I am getting at is that if a teacher/doctor/etc. says something to you about your child and you feel like it just doesn't "fit", don't stop there and treat for what they say. You must be their advocate. There a is a big difference between "denial" and "instincts".
What I've noticed in the past year is that when kids think "out of the box" they tend to get "labeled". Some kids need to "stand, jump, lay down, hop, sing, hum, close their eyes, etc." when they are learning. Some need to "ask many questions" that do not seem on topic to the person being asked but never "label" the kids who "question".
Almost all great inventors, scholars, etc. were "out of the box" thinkers and paved our way to great intellegence.
Think about what our world would be like if we medicated all of these people just on that basis?
I have ADD myself and take Adderal daily, I am a big believer in my meds, for me. Sometimes the answer for some kids is accomadation, a "disc" to sit on for movment, a "squishy" pencil for movement, eye contact from the teacher, extra time and rewards from the parents for what they have achived instead of what they have not.
I do know that meds eventually (most of the time) burn out and you will find yourself switching from one to another. My meds do take my "creativity" away while they are in my system as well. I make sure I remember to Exercise my creativity so I do not lose it.
What I am trying to get at is the quest for answers is long and emotional. The saying "if it walks like a duck and quacks like a duck then it most likely a duck" doesn't really matter. It's "yes it is a duck but WHAT KIND of duck?"
I wish you luck and pray for you as I know EXACTLY how you feel. Do not give up b/c no one will love your child like you will. :)
Quote
|