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Thread : son recently diagnosed ADD, lots of ???  
8 Sep 2010 @ 11:21 PM
liag64 Join Date: Wed 8th Sep 2010
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son recently diagnosed ADD, lots of ???

My son had an IEP but the services were removed last December due to school performance being acceptable. He was originally diagnosed in 1st grade with a Specific Learning Disability, NOS. He did very well with the additional help the IEP provided for him. When the services were removed we saw a decline of about a letter grade in each subject. Nights were a nightmare trying to get his homework completed and it only got worse when the IEP services stopped. I took my son to the doctor and was referred to a psychologist for testing. After two sessions, the psychologist determined my son to be ADD without hyperactivity. (Can this be determined this quickly?) This qualifies him for a 504 plan but it seems that the school is reluctant to put in a 504 plan without seeing if he falls flat on his face first. I am meeting with the teacher tomorrow to discuss his needs and her ability to meet those without a 504 plan in place. Any help or guidance that will assist me in advocating for my son would be appreciated. My son also has a great deal of difficulty with writing - print is easier, cursive is hell. He is a slow reader and behind re grade level but is a whiz at math. Are these typical characteristics of people with ADD? It is all just a little overwhelming!

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9 Sep 2010 @ 12:59 PM Reply # 1
adhdmomma Join Date: Fri 4th Jun 2010
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You are your child's best advocate

Take a look at the article "Know Your Child's Educational Rights." (http://www.additudemag.com/adhd/article/1623.html). It defines the qualifications of both IDEA and Section 504. A child does not have to be struggling with bad grades to qualify for a 504 Plan. Here also is a step-by-step guide to securing accommodations for your child: http://www.additudemag.com/adhd/article/711.html

Keep advocating!

Penny W., ADDitudemag.com & ADDConnect.com Community Moderator, ADHD Momma to Luke, age 7, creator of the Website {a mom's view of ADHD} @ http://adhdmomma.blogspot.com

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12 Sep 2010 @ 3:34 PM Reply # 2
eabeam Join Date: Tue 12th Jan 2010
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I would start with "Taking Charge of ADHD" by Russell Barkley

https://www.amazon.com/dp/1572305606?tag=askdrericscho-20&camp=0&creative=0&linkCode=as1&creativeASIN=1572305606&adid=1W82XE68C64GVSG5SR6G&

I think that this is a good first resource.

http://askdreric-schoolpsychologist.blogspot.com/

http://rcm.amazon.com/e/cm?t=askdrericscho-20&o=1&p=8&l=as1&asins=1572305606&fc1=000000&IS2=1&lt1=_blank&m=amazon&lc1=0000FF&bc1=000000&bg1=FFFFFF&f=ifr

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Last edited by eabeam : 12 Sep 2010 @ 3:36 PM. Reason: Bad link.
12 Sep 2010 @ 8:26 PM Reply # 3
Megansmom Join Date: Sun 28th Feb 2010
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IEP vs 504

I hear a lot of different things about 504's vs IEP plans. Should't the key difference be that the IEP is used when services are required that cannot be through the 504? My understanding is that the 504 is for mostly accommodations, rather than actual services or modifications. For example, allowing additional time for assignments and/or tests would be an accommodation, it's not something that a special educator needs to do, it's not specialized instruction, or something additional training is required for, such as speech or occupational therapy. The IEP is more suited when some kind of special service is needed, such as with a learning disability, or the 504 accommodations simply don't work. I would want a more complete explanation of why the IEP was taken away. Did he meet his goals? How was it determined that it was no longer needed? A 504 plan may meet his needs, and you can request a 504 meeting just about ANY TIME YOU WANT TO. Really, that's all, you just request one in writing. Write to the principal if your not sure who to direct that to. Bring in written documentation from his doctor, copies of all the evaluations, examples of his work, written documentation of what you've done at home to help with the situation, and just lay it on the table, that he's still slipping. You've obviously kept records, from the details you've given. People always want to know what legal mumbo-jumbo they need to know to request services. I've found there aren't any "magical incantations." If any phrase out of the legal stuff actually helps, it's usually been "free and appropriate education". If you feel your kid isn't really getting one of those, then you have to explain why and how. When teachers complain or say something negative, I always take that as a reason to get to work. First, I work on whatever the problem is every way we can at home, I make sure to make a point of whatever it is to my daughter, and if it just isn't feasible to change from home, I start confronting the school. When teachers say or write comments, at interim report time, etc., I use that. If it's something clearly related, such as "needs to stay focused on instruction" I bring that up at the meeting, and make it clear I can't control that from home. I need the school on board to do anything about that. Some may try, but it looks really bad, inevitably,. to argue with a parent when they are putting it in those terms. The biggest obstacle is making it clear that you and your kid are taking responsibility, your not making excuses, but that you need the school to take responsibility too, for providing a free and APPROPRIATE education. That means not ignoring a "disability that effects learning". From what I've read, over half of kids with AD/HD or ADD have terrible handwriting, about half have a learning disability, too. Commonly dyslexia, from what I've read. I have a friend who has a son who is AD/HD and dyslexic. He's great at math. Personally, I think it's a mistake to try to keep it at the level of just you and the teacher. I know the common advice is always go to the teacher first, and I'm not saying that you shouldn't, just that, a good use of that time might just be to try to get the teacher behind calling for a 504 meeting, or an in-school evaluation. I guarantee your son's school either has or has access to a school psychologist. They are going to take a diagnosis much more seriously when they are involved in it, and school psychologists are one of the people that are really qualified to diagnose. That's also the person that is most likely to pick up on whether or not your son needs further evaluations, possibly regarding his reading and handwriting. If the school psychologist is worth their salt, so to speak, that person will observe your kid in the classroom, or have somebody that knows what to look for doing so, and then make a list of recommendations. That's where you can get real help. I would be asking this teacher all kinds of questions, like how does your son get services to help him catch up with reading? How is the bad handwriting effecting his grades, and how is likely to in the future? How long should homework take, per night, vs how long it really takes? Who do the parents notify to have their child evaluated for a 504 or IEP? Make it clear to the teacher what you've done so far, that your not being uncooperative. Your not asking for free ride for your son, you just need to be sure the school is going to be supportive. Don't let the teacher turn it all into a "character flaw" after a qualified psychologist has already said otherwise, and realize that the teacher is not going to write up a 504 plan, that's a support team job. I would meet with the teacher, ask lots of questions, write lots of notes, then if things don't improve for your son, or you think it's still needed, your still seeing problems, write a letter to school stating you and the teacher are working together, doing the best you can, and it still isn't helping your son, so you want a team meeting with student support services. They are not likely to turn down a 504 if there's real documentation, and if the 504 doesn't help, or if he requires services that call for an IEP, then he may end of having one all over again. Either way, at least you'll be getting people who are qualified to know actually looking at the situation again. I'm not trying to be unnecessarily harsh on teachers, but I've found very very few of them that actually know what to DO when a student is having difficulty, other than tell the parents. One of my daughter's 504 accommodations, which I asked for in writing, is that she is not required to write cursive, she can always print, or type when it's practical to. She was changed to an IEP plan at the end of last year, but she doesn't loose any of the 504 plan, it's all just incorporated into the IEP. Handwriting makes a big difference as they go up in grades. If a student can't get their ideas down on paper, in some kind of readable way, they are not going to be graded for what they really know. Bad handwriting is so common among ADD & AD/HD kids it used to be on the teacher's checklist of possible signs of the condition. Grades are not the only deciding factor regarding IEP's. There are students in gifted and talented programs that have 504 plans or IEP's. You have to not let the "labels" scare you. If you can get some communication going between the teacher and the school psychologist---that can make a world of difference, and can help make clear what issues your son is having that are effected by this. Hope some of this helps, I know how difficult dealing with the school really is. You have to be thankful that it's education, not behavioral problems, that are your key concern, but when that's the case (as it is also with my daughter) it's REALLY hard to get the school to acknowledge it.

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10 May 2011 @ 7:14 AM Reply # 4
jasonmark Join Date: Tue 10th May 2011
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There is a new video to help ADHD students improve handwriting

A new version of the video " Anyone Can Improve Their Own Handwriting " has recently been placed on Amazon.com streaming videos. This videos is based on helping with hundreds of students with ADHD and dysgraphia. Also the book " Creative Painting for the Young Artist" will help with handwriting and painting ability in dysgraphia. A synopsis can be found at https://sites.google.com/site/jasonalster/

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Last edited by jasonmark : 11 Jun 2011 @ 8:30 AM. Reason:
24 May 2011 @ 3:34 PM Reply # 5
mammawindy Join Date: Tue 24th May 2011
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From the Child's perspective

Make sure you get as many documents that can be used as evedince that he needs the 504 as possible! Make multiple copies too! I went through elementary school with out any "special treatment" and it was HARD! I got testing for a 504, I got testing to be put in special ed for reading comp, NOTHING happened! I barely passed reading because reading comp was NOT my friend! I was diagnosed in second grade and just like your son it was a very fast diagnose! I don't even remember how it happened but one week I was tested and then suddenly I'm on meds! So don't worry what with technology it's getting easier to diagnose apparently! Since second grade I moved from "ADD" to "ADHD"! In middle school though my parents tried to get me a 504 and the school wouldn't have it! I was barely passing my classes, my attention was terrible, I was taking meds, where did the school find reasoning to reject the 504? I haven't the foggiest! My mom feels that it was the school being lazy. Honestly? I feel the same! My teachers were extremly supportive of me and wanted to do anything they could to see me succeed (I was still in regular ed) but the "higher ups" didn't know me personally, they didn't see me work hard in class only to not get the grades that kids who put that much effort normally get, they weren't in my class seeing me struggle to retain things, they weren't in there seeing me do all I can to get extra help, they weren't there. The "higher ups" depend on evidence to prove that a student needs help. Bring his school work, bring his grades, chart out the changes in environment compared to how he was doing in school, FIGHT! Do all you can to get the help your child needs! He will be forever grateful in the long run! I DID graduate from High School and got accepted by my dream college, Barely. I had no help from the school! After middle school my parents gave up on going through the principal to get help, instead at the beggining of any new class I would give the teacher a note explaining my situation and my parent would constantly comunicate with them. This is the only way I graduated! So communicate with the teachers! If the principal won't have any of "this" the teachers will! And if they don't then try to find a better teacher because its hard to be motivated if the teacher doesn't even care! Keep caring, keep fighting, keep communicating!

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11 Feb 2012 @ 1:44 AM Reply # 6
SPEDKid1992 Join Date: Thu 9th Feb 2012
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Just Keep Swimming, Just Keep Swimming...

The best thing you can do is to just keep going. My mom fought tooth and nail for three years to get me an IEP, and I was diagnosed with ADHD Inattentive Type (which is what your son has, if his doctor diagnosed him "ADD without Hyperactivity"), a Specific Learning Disability in math, and Sensory Integration Dysfunction. She learned everything she could, read everything she could get her hands on, and saw everyone she could to get second and third opinions so that she knew EXACTLY what was going on. When it was time to meet with the school system, her evidence was so overwhelming that they were forced to give me the IEP, which I retained from third grade through twelfth grade, when it was terminated after I graduated.

Do not let anyone or anything get in your way. The IEP process is so complicated because to put those accommodations into practice costs money, so schools want to be extremely careful who they give them to, on the exceedingly, ridiculously rare chance that a parent is simply trying to milk the system. It's unfair, and it adds to an already overwhelmed parent's burden, but that's the reality of it, and the best thing to do is to just keep going. Set your eyes on the prize and don't stop for anything.

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