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Thread : How To Fight An Undiagnosis  
11 May 2010 @ 8:40 PM
ADD Partner Join Date: Tue 11th May 2010
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How To Fight An Undiagnosis

My S.O. has gone back to college after a 15+ absence (we've been together 8 years). I hadn't known him when he was last in school and was unprepared for the train wreck that awaited. Four semesters in, he has struggled throughout despite being extremely smart - dropping classes despite studying for hours upon hours, having trouble organizing his thoughts, completing readings, and learning concepts.

He has a history of academic issues dating back to kindergarten, including barely graduating high school and flunking out of college the first time through. Seeing the extreme amount of effort he's been putting in with terrible results, we've been trying to find the source of the issues. We started trying to work through the university. He completed a battery of clinical tests which found a high IQ but were inconclusive in terms of finding any learning disabilities including ADHD (although the conclusion said that the interview questions brought up some possibility of attention issues). He took a learning studies course and took another assessment test through the university (also inconclusive).

We finally went outside the university for a psychological evaluation and he was diagnosed with ADD (inattentive type). Since the diagnosis, we've read several books on ADD and ADHD and it really does seem to fit the problems he has been experiencing. Since he has insurance through the university (and getting the diagnosis had been out of pocket), we've moved back to the university clinic with the diagnosis in hand. He was started with 10 mg of Adderall 2 times a day, moved up to 10 mg 3 times a day, and on the last visit was moved up to 15 mg 3 times a day. He hasn't felt results with the medication so far. What concerns me is the doctor said on that last visit if he doesn't respond to the lastest prescription it's a sign he doesn't have ADD after all (!!!) and he would like to back away from the diagnosis and look at other causes. From what we understand about ADD medication, this seems incredibly wrong.

Finding another doctor means moving out of the university system which means out of pocket. I'd like to argue with him first but we need ammunition. First, is his latest dose considered a lot? Second, what else can be tried as far as medication? This has been an incredibly frustrating process and we really felt like we were coming to the end of a long road with the diagnosis only to have it in danger of being stripped away!

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12 May 2010 @ 6:10 PM Reply # 1
ADD RN Join Date: Wed 21st Nov 2007
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When I was diagnosed

I was on 30 mgs of Adderall in the morning and another 20 in the late afternoon and I am only 4"11" . Also the adderall didn't work as well as the Ritalin and the other medication I think was Vanase I forget didn't work at all. ( It was non stimulant) Medications are tricky and he needs to have his meds tweaked. For example I also had depressive tendencies and the combination of Wellbutrin and Ritalin worked so well for me could not work for others . Certain med for the ADD known as the Ring of Fire is deadly combo and make them very violent. You unfortunately need to find a good doctor who know all about the 5 types of ADD/ADHD and make changes to fit your boyfriends type of ADD. In school he can get accommodations I did it just for my own personal assignments but it has been a life saver/ I hope this helps t (Judi)

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17 May 2010 @ 8:31 PM Reply # 2
kyoto20@comcast.net Join Date: Mon 3rd May 2010
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fighting undiagnosis

Boy, when I hear of professionals who have a lack of imagination or info I want to scream. I'm a late-diagnosis ADHD woman who went thru years of the wrong diagnoses before learning of ADHD. I also have the inattentive type and my school history sounds very similar to your partners. There are more meds for ADHD than just Adderall. I don't get giving up after trying only one. If ADHD is ringing bells for you as the diagnosis, don't give up because of one person. I take a medication called Strattera and the difference it makes for me is profound. Ritalin did nothing but make me feel freakishly wired. Everyone is will respond differently to each med and thats why the school doctor should TRY ANOTHER TYPE before dismissing ADHD. In fact, if he goes on moving away from ADHD and you two are sure it's right, ask if there is another clinician you can see there. If there isn't, check with county low cost health clinics. Once you find someone willing to work thru this with you, you can try different meds. Believe me, I understand about the cost thing. Strattera has no generic available in the US yet and it's very expensive but I just found and 800 number to a company that can fill the Rx for half what I've been paying. So there are ways to cut the costs but you shouldn't give up. I absolutely feel that I got a life once I understood about ADHD and committed to learning to live with it and make it work FOR me instead of against. I wish your partner all the luck in the world and kudos to you, too for giving so much support. It will help him tremendously. Heather

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Last edited by kyoto20@comcast.net : 17 May 2010 @ 8:32 PM. Reason:
20 May 2010 @ 11:02 PM Reply # 3
pelican Join Date: Thu 20th May 2010
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to kyoto20@comcast.net

Please advise, what is the 800 number you referenced above, where you obtain your prescription?

Thanks.

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27 Jun 2010 @ 7:40 PM Reply # 4
throrope Join Date: Sun 27th Jun 2010
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Try another med

I'm with others on the meds.

I've used Methylphenidate the Grand Daddy in various forms with success, tried Focalin with no success, but haven't tried Adderall.

Methylphenidate was put to work before ADD was identified and we understood what it does years later. It's also one of the cheapest medications available.

Since the medical establishment is only scratching the surface of brain chemistry, the concept "If the solution doesn't work, you must not have the problem" is reprehensible from any perspective. Your doc's attitude gives reason to find another and I can't imagine that your system only has one. If so, ask him to try you on others. If he refuses, take him to task within the system. You may find he has motivation.

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