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Thread : New here and need help getting educated for my child  
25 Mar 2010 @ 2:02 PM
shawnawrites Join Date: Thu 25th Mar 2010
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New here and need help getting educated for my child

Hi, from Michigan I am new and I know it's a lot to ask of the veterans to help educate me on what I need. I have had one person tell me get a 504 and another an IEP. My daughter's psychiatrist finally recommended IEP but, we called up and scheduled a 504. So, I don't know whether to change it or not.

I have NO clue what I need or what the heck I am doing. I only know my daughter has severe ADD and needs help. Her organization, planner, homework, attention span, etc is hurting her. She is very smart and wants to do well but, it's hard. Sometimes she forgets or loses track seconds after talking to her. I don't know what accommodations to ask for or ideas of what I need to ask for that has helped others. How do I even get an IEP I looked for a CHADD group near me and we don't have any in my town or less than 2 hours away. I don't know who to contact, what to do, but, I need to go into this meeting that we made knowing what I need to ask for and what steps to take. My husband just wrote me and said for a 504 it takes like 65 days and she may not get any help until next year. He said the IEP looks like it's even harder. This breaks my heart. I want her to continue to love school and not feel like a failure.

Some background...my son who is now 15 has ADD also. I have raised him without medication or intervention until last year. He is brilliant, cares about people, loves to help people out and volunteer, he's extremely smart etc. He has always been that way so due to stigma, prejudice, etc we avoided it. We had a very bad experience with a teacher when we let the teacher know he was ADD. It's like the minute that is heard it's a peg to stick a child in. I now feel like that was a mistake and one teacher shouldn't have scared me away. He is a freshman now and these accommodations could have helped him and can help him in college. The self esteem blows from yelling about organization, attention, remembering, etc. if only I and the teachers understood would have and could have been prevented. The more I learn the more I know I want to work with my daughter and raise her with all the help she can get. She's in 3rd grade, just was put on medication about 4 months ago, and now I want to get her help so she can be worked with on using a planner, packing up homework and books, allowing extra time, not to play music while kids are working, etc. Simple things could help her. She loves math but, in the background of the paper it has pictures on it. Example would be a scarecrow with math facts in it. My daughter will do all the math outside of the picture first and then do the inside. I realized the picture was distracting to her. The teacher also said that sometimes when Jaiden is doing her work she will go to a separate table and work on it...as if she is trying to get out of the commotion. So, it's things I am learning she needs but, I also want ideas on things I may need but, don't realize are affecting her.

So, anyone who knows how to go about the IEP or what accommodations that would help me out big time. I realize it's a lot to ask. I feel overwhelmed as I try searching through websites of info ...i've been trying to copy and paste stuff so I can print it out, read it later with a highlighter and try to figure this out...but, I feel like I am drowning. What is the usual time line this stuff takes? I feel like I have to fly a plane in a couple days and I have NO idea how to even get into the cockpit.

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28 Mar 2010 @ 2:09 PM Reply # 1
Countrybumpkin8371 Join Date: Sun 28th Mar 2010
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FOrgot to add

I am sorry I forgot to say that you can get the 504 and then the iep. they will follow the 504 until the iep. So if you already have it scheduled go ahead with it but at the same time schedule an iep so your child will get the services needed in the mean time.

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11 Apr 2010 @ 3:00 AM Reply # 2
hvacgirl Join Date: Wed 1st Jul 2009
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Learning as much as you can

I think the best thing you can do for your child is learn, learn, learn, which is exactly what you are doing. My son was diagnosed late and I was the one who finally said "something is not right" and took him in for testing. Up until then, everyone thought he just wasn't living up to his potential. I have gone through the 504 process, but for various reasons, I haven't been satisfied with the outcome. There is a long list of things, but it is no one's fault, it's just that there are no easy answers and everyone is learning as they go.

I will say though, that the best thing I have done was to set up an organization system at home that is very concrete and predictable for all involved. Every hour of the evening has an activity that is given a star when it is completed. If he does all things on the list, then he gets 1/2 hour of T.V. time, computer or a game. It is very important that we stick to this plan as closely as possible for his sake as well as ours. He actually becomes much less stressed and I try to break things down into chunks so that he isn't spending too much time on one activity. For certain activities, I even set the timer. He complained at first, but now he tells me he is relieved.

I also have changed my expectations. I decided that it is most important to me that he understands what works best for him, which means I have educated him on ADD and we learn together. At first, he resisted this, but the more conscious he has become of how his brain works, the better he has become at being his own self advicate. Don't get me wrong, he is still a teenager and he still has a lot of growing up to do, but as long as we are moving in the right direction, I don't sweat over the small stuff anymore.

If you want more ideas that have worked well for me and my son, I would be willing to talk back and forth on a regular basis. I have become stressed just like you and everyone else dealing with this, but the more you build a community of support and the more you learn from people who are going through the same thing, the more progress you will see which is ultimately the end result you want.

One final thing, it is going to be a long process and in the beginning of this, my goal was to find one thing that was "the answer" to all the problems. I now know that this is a complex problem that needs to be addressed on many fronts and each day is a day to learn and grow and to do the best I can, but even if things don't seem to be working, don't give up! My son tells me all the time "thank you! He is happier, more at peace with himself and will eventually be able to help others. He might not have the best grades in school, but he has the best grades in life, and that's what really counts.

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