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Thread : Anyone Else Have to go Back Every Month?  
2 Oct 2009 @ 5:39 PM
fireplacenut Join Date: Fri 2nd Oct 2009
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Anyone Else Have to go Back Every Month?

Hi everyone :)

I was diagnosed as having adult ADHD two week ago. I took phentermine (diet pill-stimulate) from 2004 until two weeks ago. I tried to "go off of it" two weeks before school begain this year (I am a teacher) because it got really expensive to order it online (I'm not too 'thin' to be prescribed it by a doctor) and it was awful. My focus was awful, I hated going to work, I was mean to the kids (who I normally adore), I lost my keys three times, driving anxiety came back, plus much more. I started taking then phen and felt ok again almost right away. So, I did some research ..and figured I better get evaluated for ADHD.

Anyway, my psy. nurse says I need to come back every month. Is this normal? Even with insurance, 54 mg. Concerta (which I love so far) is $55 and office visit copay $45. Every month-that adds us.

Does everyone need to go back every month or is she just extra cautious?

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3 Oct 2009 @ 1:21 PM Reply # 1
thommylee Join Date: Sat 3rd Oct 2009
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Monthly Psychiatrist Visits Can Turn Into Quarterly Visits

I understand your frustrations "FireplaceNut". I was diagnosed in 1995 with ADHD having taken any and all written tests and exercises available at the time, and since that time. There's no doubt about the diagnosis. Initially, I was made into a "science experiment" as doctors back then didn't really know how to treat ADD/ADHD. I went through some very tough and sometimes intolerable meds, some of which I could not take for the 6-8 week period needed to determine the med's effectiveness. It wasn't until 2000 or so when I finally found a psychiatrist who actually put some science into his treatments. What a novel idea! At first, the meds he put me on had to be closely monitored. And, like you, I had to go monthly and pay the price for the visits and multiple meds. I was also seeing psychologists monthly. But I never did find one who was "effective". That may have been me, and not their fault. I have to think that as all psychologists can't be inneffective in their specialty field of ADD/ADHD. Due to the expenses, and not getting anywhere, I had to stop seeing the psychologists. The meds finally got "fine-tuned" enough for the effects to stabilize over a long term. For the last 4-5 years, I've only had to go see the psychiatrist for quarterly visits. The insurance plan provides for buying 90-day supplies of mail-order meds at the price of what 2 months would normally cost. With only one visit every 3 months, and the savings on the meds, the savings overall were, and are substantial. But one benefit stands out that most don't have. I have an email dialog with my doctor between visits should any issues arise, or I need a meds refill that fell out of my quarterly cycle. Most often, I have an answer back within a day or two. I can't say enough about my doctor in regards to the "over and above" support he has given me for several years now. So, to answer your question, yes, you must be monitored monthly. Just hopefully not for the long-term. If things stabilize enough, you should be able to go quarterly at some point. However, meds will only do so much. I've found the hard way that no matter what the meds, life can be, and is for me, a daily struggle. I've found that although co-workers and others tell me they understand, they really don't. Very often, I get cornered into situations that a "normal" person would resolve quickly. I tend to just make things worse by not being quick on my feet with answers, and letting anxiety get the better part of me. The "anxiety" part of the big picture was cause for me to get on meds that don't have stimulents. I did take Concerta for a good long while.....at the maximum dosage. Then came a time when I felt that I was "slipping". With the doctor's approval, I tapered off of the Concerta down to zero. No difference! I guess my body had become immune.......who knows. I did get started on Vyvanse about 6 months ago. Although starting out at a "starter" dose, I felt that it was helping with the focus. I've since gone from 50 mg/day to 70mg/day. There's a very noticable difference in my ability to focus. I take NO caffeine at all as I did with the Concerta to give me a little "kick-start" in the morning. Just a soda would be enough. If I do that now, the anxiety kicks in real fast! I don't know if I'll have the dosage increased again next quarter. Whatever happens, it still doesn't help with the other issues of ADD/ADHD such as my LD, anxiety, extremely poor (and diagnosed as such) short-term memory, and extremely poor social skills. Those, I've been unable to resolve. And as such, I live pretty much an empty life outside of my hi-tech work that I do enjoy and excel at. I pray that I never have to face a competitive job interview at this stage of my life. For whatever reason, I never have had to face that over the course of life. But life outside of work has ceased to exist at this point. Anxiety continues to be a huge factor. But, nothing I've been able to do to take care of that. Lifestyle changes, as suggested by the psychologists, just didn't sink in. At their recommendation, I read several books on ADD/ADHD. However, after reading them, I couldn't remember what I read. A book written to teach memory skills worked to a point......in chapter 8 out of 30 something. To this day, I'm still unable to get past that point. A each chapter builds on the chapters before, simply skipping that chapter wouldn't solve anything. So, although the concepts provided by psychologists sounded reasonable at the time, it's hard to teach an old dog new tricks.............a brick wall in my case. I wish you the best of luck "FireplaceNut" as you move forward. I'm hoping that if you reply to this thread, I'll get an email notification. Else I may not find my way back here. I'm open to emailing to help answer your questions and concerns, but only if email addresses can be kept hidden from the general thread. There's a lot more that I can share, if it will help.

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5 Oct 2009 @ 1:10 AM Reply # 2
ms.ditzy Join Date: Mon 5th Oct 2009
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Me too, fireplacenut!

Your posting stopped me in my tracks - I too am realizing (at age 61!!! oh, the time I've wasted!) that an ADHD diagnosis is what's been lacking and I've also come to realize it through the relative transformation in my abilities and overall well being that I started to experience with phentermine. I'm presently without health insurance (damn Baucus et al to hell) or even a doctor as I'm relatively new to Portland, Oregon so I've got to find a doctor who will diagnose and prescribe without bankrupting me. Question to you and any other readers: would I be best served by a primary care physician? I can't afford specialists or any sort of "team" approach - though I plan to go to the local (free) CHADD meetings. Thanks for any advice any of the brothers/sisters may have.

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5 Oct 2009 @ 4:42 PM Reply # 3
hereandnow Join Date: Mon 5th Oct 2009
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Try your family doc

Fireplacenut,

I was diagnosed about 10 years ago and have been on several different stimulants. I few years ago I had to stop seeing my psychiatrist due to a change in insurance, but I then found out that many family doctors will manage meds for you, provided that you already have a regimen that you've been taking that works for you. I've had 2 general practitioners (including my current one) provide my monthly prescriptions for Adderall. I initially brought in my prescription bottles so they could see I was already taking them and that was good enough for them. All they wanted from me after that was to come in every 6 months or so to make sure I was healthy and not abusing it. Every now and then I go to a psychiatrist if I feel that the formula needs to be tinkered with, but for just keeping the status quo the family doc is a great option, especially since to get refills I just call the doc's office then go pick up the Rx and take it to the pharmacy - no office visit necessary. They usually charge a small fee ($5-10) for having to write a script for a Schedule III drug, but it's much cheaper than a psychiatrist visit if you're not seeing them for therapy.

Hope that helps.

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6 Oct 2009 @ 4:27 AM Reply # 4
ms.ditzy Join Date: Mon 5th Oct 2009
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Question to Hereandnow!

If you read my post above, I have not yet been diagnosed (but my own extensive research is utterly convincing). Is it your understanding/experience that a Family/General practitioner will not or cannot provide a diagnosis? My reading suggests they can. This is all new to me - very promising but a bit overwhelming & confusing - so I'm just trying to figure out the best way to proceed and always bearing in mind I'm uninsured and of modest means. Any thoughts?

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7 Oct 2009 @ 5:32 PM Reply # 5
Elaine20 Join Date: Sat 10th Nov 2007
Threads: 5 Posts: 265
Who can Diagnose

In many cases a family/general practitioner can diagnose ADHD and are usually familiar with it since they see children as well. I would ask your family doctor, if you have one, if he can diagnose it or if he can recommend someone who can. I would also ask at your CHADD support group--they may know of doctors who can evaluate ADHD in adults. The most important requirement is a doctor who is knowledgeable and experienced in diagnosing and treating ADHD in adults. Not every one is equally knowledgeable and that includes psychiatrists. Our family practitioner happens to know a lot more than most psychiatrists when it comes to ADHD. But it is equally important that the physician be able to evaluate you for other disorders since many adults with ADHD may suffer from anxiety or depression as well. For example, a patient with generalized anxiety (GAD) and ADHD usually needs to have the anxiety treated first or the stimulants used for ADHD may greatly increase the anxiety. They can both be treated successfully but the doctor has to be able to evaluate for those conditions as well. Fortunately, our doctor is skilled in diagnosing and treating the other disorders that frequently accompany ADHD.

Generally, once you have found the medication and dosage that works for you, you should not need to see the doctor or psychiatrist as often. Perhaps every 3 months at first and then every 6 months. The exception would be any time a change is being made with your medication or dosage, or if you are having problems with the ADHD or the medication. Most doctors will allow you to call ahead and stop by to pick up your new prescription each month or even mail it to you. Some insurance plans allow you to get a 3 month supply of meds if you use the mail order pharmacy--I was able to do that and it made the process so much easier.

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7 Oct 2009 @ 9:30 PM Reply # 6
fireplacenut Join Date: Fri 2nd Oct 2009
Threads: 1 Posts: 1
Thanks guys!

Thanks Tommylee for such a detailed response! I am looking forward to only having to go quarterly. She even sent me for an ekg (came out normal:) ). I'm assuming she sent me b/c phentermine has such a bad reputation due to it being part of phen fen. But it was the fen that was bad-phentermine has been around since the 50s. Also, if I'm on concerta for awhile I'm hoping my gen. pract. will be open to prescribing. I have to go there quarterly anyway for my hypothyroidism so why not.

Ms.Ditsy-I would be happy to talk with you more about anything. Dr. Anchors (the doc. who patented phen-pro) has done a lot of research and has treated many patients with phen. for ADD. He says it work about 80% as good as rit. and 70% as good as adderal (or something like that.). Most docs. will not prescribe it though. But Concerta has been working great for me so far. Also, find a nurse prac. (cheaper than a psy.) that knows about ADHD. It will save you a lot of time/money.

Hereandnow-Thanks a lot for that idea. I will definitely try that w/ my gen. prac. He is really into the natural stuff though. He wants me to meditate for at least 20 minutes a day. He also called Lipitor "poision" so I'm not sure he will give me Concerta or anything similiar. I told him I was taking phen. and I didn't get a lecture. I showed him a picture of me at 204 lbs. and he probably thought, "Well I guess being obese is worse." I was kinda worried that my psy. nurse would think I was just wanted another appetite suppressant so she wouldn't believe me. That is so far from the truth and to be honest, phen. wasn't even doing much for my appetite after all of these years. Pretty much, my anxiety returned and that scared me greatly. I never wanted to experience that again. I'm glad that someone listened.

Thanks again to all of you!!!

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8 Oct 2009 @ 3:43 AM Reply # 7
ms.ditzy Join Date: Mon 5th Oct 2009
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Many thanks to Elaine20 & fireplacenut.....

I so appreciate your shared info and kind advice which I've taken to heart. As I'm new to "all this" I'll no doubt be bugging you all/y'all again as I go along - it is such a help to know there's a fellowship of kindred spirits out there!

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15 Dec 2009 @ 5:01 PM Reply # 8
fabulicious_mami Join Date: Tue 7th Jul 2009
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Family Practitioner

For anyone living in the State of Florida, you should know that many primary care physicians/family practitioners will NOT prescribe stimulant medication. This was a huge issue for me when I received my diagnosis. I had to see a psychiatrist to get a script.

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18 Dec 2009 @ 12:44 AM Reply # 9
Heather Join Date: Thu 24th Jan 2008
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the right doc can = fewer visits for Rx refills

According to the Controlled Substances Act, which has essentially classified all prescription ADHD meds as Schedule II controlled substances, "no prescription for a controlled substance in schedule II may be refilled". In other words, that '# of refills' line at the bottom of the Rx you receive from your doc for Adderall, or Vyvanse, or whatever the case may be, can not and never will read anything but 0 and, I do believe, they're only supposed to give you one Rx at a time (another lesser known tidbit: controlled substance prescriptions must be written on their own Rx sheet; they can't be written on the same sheet as, say, your blood pressure, depression, or antibiotic meds). Thus you're technically gonna have to return to your doc every month for another...and another...and another. Truth be told, though, there are practitioners out there who--if or once they feel they have a well established, trust-worthy clinician/patient relationship with you--will simply write and send you off with 3-4 separate pre-dated Rx's, each reading '0 refills' at the bottom. Tah-dah. Not exactly something that's widely advertised, so best bet is to ask around to other people you may know in your area who are taking similar meds and see if any of them have happened to stumble upon one of these kind souls. Or, once you feel comfortable with your current doc you can always just ask if it's something they would do, or would consider doing for you in the future. No harm, no foul in posing the question :)

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