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Thread : I'm My Own Enemy  
16 Jul 2009 @ 11:00 PM
mom of two boys Join Date: Thu 16th Jul 2009
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I'm My Own Enemy

I have a 6 year old son that was diagnosed ADHD in March. He's been seeing a psychologist twice a month and we took him to a NP who specializes in Sound Therapy. We were so excited about it, but I honestly found myself hiding the details about this therapy because it's "out there". Basically, by using sound waves, she can tell where he has deficiencies (spelling?) in his body or too much of something. For example, she said he was toxic in mercury, but deficient in Vitamin C. There are a whole list of things she goes through. The big thing was that she said he was wheat and dairy intolerant. We Immediately put him on a dairy and wheat free diet (so difficult!!!). We began seeing results about 2 weeks later. We were thrilled. But after about 2 1/2 months, those results began to reverse. We took him back and she adjusted the supplements he was on, but now 2 months later, nothing. We took him to his pediatrician and now have a script for focalin xr. We will be starting him on that after he has a ecocardiograph (he was born with very small hole in his heart) and gets the all clear. Whew, that wasn't the point of my post, but I felt like I needed to give a background. The reason I'm my own worst enemy is because I'm constantly hiding and feeling guilty. I admit I used to be one of those people who thought kids labeled ADHD just needed a swift kick in the rear, but now as a parent of one, I truly realize the challenges as a parent and for my child. I see him struggle daily. But I have had such difficulty getting over myself! Why can't I just feel comfortable with this diagnosis? It's almost like a "dirty little secret" that I hide. When my child is in public and is acting out and I feel I have to explain his behavior to someone, I kinda whisper and look apologetic. Knowing now what I didn't know before, I shouldn't feel this way. ADHD is so so so taken the wrong way by society, and society has so little tolerance for ADHD. I shouldn't be contributing to it. Any advice out there for me? Anything to help me put this into perspective? Thanks!

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17 Jul 2009 @ 9:06 AM Reply # 1
notcrazylazyorstupid Join Date: Sat 11th Jul 2009
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Labeling

I can really identify with this post--I have ADHD and I struggle with know who to tell. For me I have two categories: need to know and need support. For instance, my husband needs to know about my diagnosis (as if he needed it! LOL) and someday I may need to explain it to my son. I also have a couple of close, trusted friends who know and who I can vent to.

On the other hand, I feel no need to tell people on the street, people I work with (depending on the job--actually right now I have a boss and several co-workers with it, so it's no big deal), certain family members, etc.

I'm sure you know this already, but your son's whole identity is not ADHD. You don't owe strangers an explanation for his behavior. It's none of their business! And you run the risk of stigmatizing your son further and making him feel marginalized. At the end of the day he is who he is. Spend a little time every day, if you don't already, focusing on the good things about the way his brain works. Is he funny? Creative? Spontaneous? Sensitive? Accepting your son for who he really is--all of him--will make it feel less shameful to you, I think. But you know? This is a life-long process, and it's hard. Be gentle with yourself and with him. You have responsibility to your family--not to judgmental strangers.

I hope I haven't been too preachy. This is hard, but it will get better :)

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17 Jul 2009 @ 9:43 AM Reply # 2
mom of two boys Join Date: Thu 16th Jul 2009
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thanks

I tend to sometimes forget that he just doesn't have the control and my expectations can be too high. I struggle with that daily, and I think that I'm slowly realizing his limitations. But I don't want to give the wrong impression of him, or myself. He really is an amazing child. I've never seen a child so empathetic. It is really something awesome to see. At a school party one day, one of the girls in his class was crying because her mom was late to the party. My son put his arm around her and told her that everything would be alright. He went to get a tissue for her and very lovingly wiped the tears from her face. I almost cried myself! He is so caring toward others. He also has a special bond with our 2 year old. I've always fought (even as an adult sometimes) with my brother, but to see my boys together really makes me a proud mama. The love each other so much! My oldest also is such an amazing (how many times have I used that word?) storyteller. He is so creative and imaginative. When his ADHD gets in the way is when he's around many children and when his imagination really runs away. Unfortunately, I can sometimes lose sight of the important things and focus too much on "controlling" his behavior. After the fact, I apologize to my son and really get mad at myself. Not to try to put blame elsewhere, but I think the years of labeling have contributed to my lack of focus on the real issue of ADHD. I can sometimes allow those labels to guide my thinking, and I just have to remember that many of those labels are just plain wrong. I've learned a lot about ADHD in the last few months and am shocked at how little people understand about the true nature of this disability. I'm unaware of a awareness campaign out there about ADHD, but there should be one! We need more education to the public, especially in schools, so that people realize that this isn't a shameful condition.

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22 Jul 2009 @ 4:45 PM Reply # 3
petiza626 Join Date: Wed 22nd Jul 2009
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So much to say!

I have a 14 year-old son with AD/HD. He was diagnosed in 3rd grade, and has been on medication ever since. I totally relate to the comments about deciding who to tell. I have often enrolled my son in sports thinking, 'the coach doesn't need to know this'... 'I want him to treat my son like everyone else'. Invariably, his behavior/ difficulties warrant an explanation. I, too, battle with the notion that "these kids just need a 'swift kick in the rear'... and I know other parents, teachers, and coaches may be thinking the same thing. Honestly, I don't always know which behaviors are volitional, and which ones are out of his control - a function of a true disability. I don't doubt in this diagnosis. I know that it is REAL. However, as parents, we can't lower our expectations for our children, because the rest of the world will NOT.

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13 Aug 2009 @ 10:50 PM Reply # 4
my3boyz Join Date: Wed 5th Aug 2009
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I completely understand

I sit here and ask someone to give me serenity. I am a mom of 3 boys my oldest has add/ld. I feel so hopeless as I type this message. I try to find the positive all the time, but he comes home in a good mood sometimes, but a lot of time he is so wound up we are on a hair line trigger. Once he has a melt down it takes forever for him to settle down. He spent 5 minutes screaming in the shower because of a lego. He is 9. He wants to know why I get mad at him all the time. That makes me feel so horrible. I try to be positive, but after hours of homework battle, transitioning him for bed time plus I have 2 other kids to put to bed. I am emotionally wiped out! I feel so alone.

I am lost, frustrated, I feel like a horrible mom because I don't know what to do! I love him so much.

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13 Aug 2009 @ 11:11 PM Reply # 5
mom of two boys Join Date: Thu 16th Jul 2009
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I understand

I totally get where you are coming from. My oldest can have melt downs too, just yesterday my husband called me from home (I'm visiting my bro in CA and my husband and kids are in WV) and told me that our oldest had a melt down for 2 hours. Just crying and having a fit. He can get so emotional sometimes and it throws him in a tizzy. Sometimes I get so frustrated in times like that. It's hard to keep my cool and to enjoy his company. Hang in there, I know you have for a while now, but just keep in mind that there are others like you out there and you can always call on them for help and advice. Good luck!

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14 Aug 2009 @ 2:17 PM Reply # 6
nini Join Date: Wed 22nd Jul 2009
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It's good to know that I am not alone

My 7 year daughter was just diagnosed with dyslexia and ADHD-combined, I also thought that these kids needed more guidance and parent control. WOW!! Did that come back to bite me! I am stuggling with my own guilt and frustrations. I just want to help her and I don't know what's right or where to start.

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14 Aug 2009 @ 6:44 PM Reply # 7
mom of two boys Join Date: Thu 16th Jul 2009
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not alone

I don't wish guilt or frustration on anyone, but it is so helpful to me to know I'm not alone in my feelings. You really question your parenting skills and whether or not you are doing the right things by your child or if you're just scaring them for life! I often don't know how to handle certain circumstances and have to remind myself that parenting is difficult and that I'm not a bad mother. Sometimes you just want to give in to your child's demands or tantrums because it would just be easier, but making the right choices can be so hard--but every time you make those right choices it's a win in the parenting column and for your child's future.

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15 Aug 2009 @ 1:29 PM Reply # 8
theotterone Join Date: Fri 24th Jul 2009
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I'm My Own Enemy

I am a mom with a 9 year old girl who was just diagnosed. Thing is, I have been diagnosed too. It's hard to deal with. How to I help her when I am messed up too? Remember, you have friends, family and medical professionals to help, and USE THAT HELP!

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