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Thread : Help! We Don't Have a Diagnosis & Don't Know What To Do  
26 Nov 2008 @ 12:43 PM
WiggleMonkeys Join Date: Wed 26th Nov 2008
Threads: 3 Posts: 3
Help! We Don't Have a Diagnosis & Don't Know What To Do

Our 6 year old daughter has always been different, she never had friends at preschool like her older sister, when picking her up she would be playing by other children but with herself, her handwriting is not as good, she doesn't always know how to handle situations, she is always chewing on things, she always wore her shoes on the wrong feet until recently and still puts them on the wrong feet but can now correct herself, she always has had something in her mouth, and she over reacts at the littlest thing. Her Kindegarten teacher had us get her evaluated by our pediatrician and also wanted us to have her evaluated at school by the occupational therapist. The pediatrician told us that she met enough characteristics to be considered ADD more on the attention side, but with her other delays she might grow out of it. He also said if she continued to have issues in school in the next year or two to come back. The occupational therapist decided she didn't need to be screened last year despite the teacher's recommendation and our signed permission to do so. Now in 1st grade everything is starting again. We have finally gotten the paper work to approve an evaluation by the occupational therapist, but they have 60 days to complete it. When we called our pediatrician back they called with two psychiatrist names saying they can't do anything more. I spoke with the guidance counselor at the school who said that we have to try other measures in the classroom before they recommend an evaluation by the school psych, and then that request has to be approved. She is not failing, but she is at the bottom of her class despite reading help and being in the title 1 program. The school is taking steps, but no one is saying anything and I am not certain we are dealing with ADD. She has other tendencies that might indicate a learning disorder or even and autism spectrum issue. I know she is not severe, obviously she was able to enter main stream school, but I want to help her sooner rather than later and think an accurate diagnosis is key. I don't know if I should let all of this take its course, or if there is something I can do on my own. The way the school is moving it could be another year or more before we find anything out. Any suggestions recommendations, etc.

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2 Dec 2008 @ 5:56 PM Reply # 1
caitica86 Join Date: Tue 2nd Dec 2008
Threads: 1 Posts: 2
try another opinion...

I would recommend that instead of waiting for the school to act, you get another opinion. See a specialist at a research center or local hospital who, at the very least, may be able to rule out one of the diagnoses that have been thrown around. They will be more up to date in research, treatment, and diagnostics than a pediatrician. When I started having trouble in school around the same age as your daughter, my parents had me see a specialist at Emory University Clinic and that seemed to hold more weight when dealing with the school than did the school's counselor. I also remember the specialist doing more hands-on evaluations (such as drawing a picture and explaining it) when the school counselor was more interview-like. Not to say that school counselors are less able to diagnose, but going to a specialist may help get more gears in motion.

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13 Feb 2009 @ 3:14 AM Reply # 2
mominmaine Join Date: Wed 21st Jan 2009
Threads: 1 Posts: 4
Be your child's advocate

You know your daughter best. If you feel something is different then don't wait for the school. They often can't get the ball rolling until the situation is bad.

Through our pediatrician we were able to have our son tested at our regional medical center. I think the term is 'neuro-psych" evaluation. What they were looking for is ADD/ADHD. The whole process felt like an avenue for parents who wanted to get their kids on meds - to get meds. I wasn't very satisfied. But what it did do was give us a piece of paper that had weight - power.

Our saga with evaluations and eventual meds (we were holding out) and changes in meds, and changes in meds is still ongoing, but we have come out of it having a clearer understanding of our son's needs (if not an absolute diagnosis) and the power to push the school to work with us and him. ADD, Aspergers, Austism spectrum, anxiety disorder? We are all individuals and may not fall into a neat catagories. In the end, our son is now making great progress in school.

So be your daughter's advocate and push for what you think she needs. The answers don't always come quickly or easily but they do come.

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