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Been going down this road, but the buck stops with ME...
I have ADD myself, diagnosed after my daughter was at age 7, & my now-9-yr old boy was diagnosed a year ago with ADHD with anxiety/oppositional personality traits. For 3 years, we have struggled more with his extreme irritability, low frustration tolerance, & explosiveness much more than his focus. He made good grades even when he was undertreated but his teachers always said they knew if he were focused he could do even better. He has always been difficult and high-intensity with a hot temper. About a year ago it got so bad that we were always walking on eggshells and I didn't even want to come home from work. It was constant agony worrying how he would turn out, but no one wanted to treat him because he did well in school. It was all approached as a behavioral problem. He became very sullen, never smiled, frequently exploded (screaming, tantrum, rude, hitting/kicking walls) upon the slightest frustration---but not at school. He admitted that he spent all day trying not to explode & in retrospect, I believe he often just "imploded"--inside he was falling apart but managed to just withdraw while at school, then at home he just let loose. The last straw came when he told me he wanted to disappear or die because he couldn't imagine living anymore. He honestly just could not see a future for himself. After urgently seeing his pediatrician. we began evaluations by psychologists then a psychiatrist, and the diagnoses above were finally made. He improved a bit on Strattera, but after months of inadequate treatment & going for yet another (but very thorough) evaluation by a neuropsychologist, it was proved that his treatment was inadequate on Strattera. There was great foot-dragging because of his explosiveness and anxiety, and the fear that stimulants would worsen it, but finally he was started on ritalin this year.
I cannot say enough. After going up on his dose to 54mg/day Concerta, he is a changed person --- HAPPY, outgoing, pleasant, much more compliant. He is happy at school; his teachers no longer call worried about him. They call to say what a treat he is to have in class. He has plans to be an engineer. He offers to help and tells jokes. As time has passed, I've realized that my mother's side of the family is riddled with psychological problems, personality disorders, and probably a lot of ADD, especially my mother. As I've read and watched him change, and recognized a lot of his behaviors in myself, I've tried to counsel him when his thoughts are being affected by his ADD & how his irritabiltiy/anxiety/temper are related to being unable to focus. He is not an anxious or irritable person when he is on ritalin. He is now able to sort out when his thinking is not normal and no longer thinks of himself as a bad person, just someone who has to live around a medical condition FOR THE REST OF HIS LIFE. Just like his sister. Just like me. And he knows he is much luckier than my mother, who had no such opportunity. I am lucky that I can make sure my son knows early that he has a condition needing help, and that if he doesn't stick with it, he will wind up seriously disordered like my mother or worse. As for his older sister, I finally had to let her (with great anguish for me) fail her 1st semester of 7th grade & SUFFER the consequences. She is on ritalin now (after several years of Strattera) and making real personal effort to be responsible. This semester she is on the honor roll, with much better self-esteem.
I offer all this not because I know our problems are all solved. Who knows what puberty will bring & how many medication changes lie ahead as my kids grow? I had to start meds at age 40! But I want to emphasize what I have learned and what others have said:
1) If you are SERIOUSLY impaired by ADD, you will remain just as impaired as someone who is diabetic without MEDICATION, (& often the non-prescription substitutes for ADD stimulants wind up being far worse that any side effects--unprotected sex, drugs, alcohol, risk-taking, homelessness, law-breaking, death)
2) DO NOT be afraid to try stimulants even in the most anxious/explosive kid, and or maximize the dose if the irritability doesn't immediately get better but also doesn't WORSEN. He may need MORE medicine, and the anxiety/irritability may be his most prominent and disabling symptom of ADD, more than focus.
3) The person with bad ADD must understand he/she has a life-threatening medical condition and should try to learn as much as possible about it (empower themselves).
4) The person with ADD eventually has to TAKE CONTROL/RESPONSIBILITY--i.e. GROW UP. If you are not allowing someone to GROW UP, you are an "enabler" and YOU ARE PART OF THE PROBLEM.
I saw myself going down the path of disabled adult kids living in my house forever because they couldn't cope with reality. I have another family member with untreated ADD who (heavily enabled by other family members) almost died driving drunk, and cannot focus enough to provide any structure for her children, one of whom is on my mother's horrific mental road already. I will always be there to counsel my kids as adults, but never to take over. I have come to the recognition that they will have to start calling their own shots at some point, make mistakes, fall on their rears, suffer failures, and pick themselves back up the wiser for it. Being a good parent means letting your kid grow up. And if he still doesn't get it, it's never too late and probably very necessary to pull the safety net out from under him. He has bad ADD. He can only pay ATTENTION when the problem is SO BAD HE CAN'T DENY IT ANYMORE, not if you keep life easy. Love and parenting means letting go. It's hard and it really hurts, but it's not about YOU, it's about HIM, correct? If your son is telling you you're a bad parent, he may have more insight than he realizes. Listen, and do the hard thing. Let him go, so he can become a man. Let him go, even if it means shoving him out on his own & letting him fail. He will have to fall (and HURT) before he picks himself up. He has ADD, but people are often stronger than we think. He may well surprise you. Or he may flounder for years. He will probably hate you for a long time, maybe always. But once someone is grown, you have DONE your job, and anything after that really isn't for you to fix, it's HIS, like it or not. If you can't do this on your own, find a psychologist or family therapist who can help counsel you. You will need much support. I know these are hard words, but they come from years of soul-searching and reading and painful experience. I hope they somehow help in the end. Bless you in your struggles. I know I'll be with you in the trenches for years to come.
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Last edited by ADDMom : 14 Mar 2008 @ 3:27 PM.
Reason: punctuation, clarity
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