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Thread : Neurofeedback?  
20 May 2007 @ 2:30 AM
Jacque Join Date: Sat 8th Dec 2007
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Neurofeedback?

I would like to know if anyone in the ADDitude community has had personal success utilizing neurofeedback either on themselves (Adult ADD) or with their child, in the treatment of ADD, either inattentive or hyperactive. It is my understanding that at this years CHADD conference neurofeedback will be either discussed in length or a workshop will be available to participants who attend the conference. Neurofeedback is billed as an alternative or adjunct to medication use.

I would appreciate any feedback from the ADD community concerning this issue as I have a son who has mild/moderate Inattentive ADD.

Thanks, JLA

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Last edited by suzey : 12 Nov 2007 @ 9:30 PM. Reason:
21 May 2007 @ 4:26 PM Reply # 1
janabananna Join Date: Tue 13th Nov 2007
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Yes, tried it for our 10-year-old

Yes - we've had wonderful success with neurotherapy! My 10-year-old son was diagnosed with inattentive ADD (borderline hyperactivity) last fall. We were spending HOURS every day on "home"work that actually should have been completed during classtime, fighting most of the time we were working on it, having problems at bed time, and the whole family was miserable. After three months of neurotherapy he rarely brings classwork home anymore, he has a wonderful attitude and is fun to be with, his handwriting is flowing and beautiful, we don't have problems at bedtime anymore, he is receiving A's & B's at school, and his self-confidence is WAY up. All this with no meds or side-effects!!!! He finished up the neurotherapy a few months ago and all the changes have stuck with him even after stopping the treatments. We are so impressed that my husband is now doing neurotherapy for his ADD and I am doing it (a slightly different protocol) to treat depression and anxiety. My husband is off his meds and I'm at half what I was five weeks ago and feeling better than ever. I just finished a great book about neurotherapy, its history, and different protocols - "A Symphony in the Brain" by Jim Robbins. I hope you decide to give it a try - while the cost seems like a lot all at once, if you think about the medication expenses over a few years it works out to be a good deal. I'm ready to shout about it from rooftops - thanks for giving me an opportunity!

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Last edited by suzey : 12 Nov 2007 @ 5:06 PM. Reason:
26 May 2007 @ 3:09 PM Reply # 2
Jacque Join Date: Sat 8th Dec 2007
Threads: 1 Posts: 1
Glad to hear of your son's success

Hi Jana,

I'm glad to hear of your son's success utilizing neurofeedback. It must be such a relief to have found a modality that works so effectively in improving so many aspects of his academic life. I, too, have read, "The symphony of the Brain," by Jim Robbins. I didn't mean to "hold-back," information about myself or my background in my first posting but I have taken a 4-day workshop with John Demos. He teaches a 4-day workshop on "learning to utilize neurofeedback," and I thought I would be able to learn the techniques and apply them to my son. I am an RN. I have "heard," of ADDers who have, like your son, been able to almost transform their lives, using neurofeedback. I'm aware of the process but I was hoping I would connect with another Adders who had EXACTLY the same type of EEG mapping as my son and he/she could help my son understand what help it has been. I wasn't as clear with my first posting as I could have been.

My son doesn't want to utilize the neurofeedback computer program, bio-explorer, I have for him. Delayed gratification isn't a strong point with many ADDers. As I understand it, it can take up to 40 sessions with the bio-explorer program to have an effect on the "rewiring," of the brain and David only did two sessions and didn't see any change and said he didn't want to do it anymore. David is graduating from high school in two weeks and he has been accepted to a great school, here in Virginia. He underwent neuropsychological testing recently and as I stated in my previous posting he was diagnosed with mild/moderate ADD with no add-ons. David could ask for accommodations at his college but he "doesn't want to be labeled," as he calls it. David is an only child. Both his father and I have spent endless amount of time attempting to convince him that having accommodations at this very demanding college may be his best chance of him staying in school. He is so stubborn and we fear he won't ask for accommodation and will do poorly because his neurofeedback analysis states he heeds more time on tests as his EEG mapping shows he has "alpha," ALL over the brain. Not just primarily in the posterior region where it is predominate. When David starts to read material, Beta doesn't "kick-in," as it would with a normal brain. Alpha stays on and it takes longer for him to finish a test. The neuroanalysis also states David would benefit from audio books. It is so difficult for him to understand that he will have to obtain other coping skills to succeed in college. We so wish there was someone "out there in ADD land," who has the same type of ADD and could talk with David about "accommodations in college," and how it will help him in the long run. Especially someone his own age. The college he will attend informed me many ADD students do very well. Of course they also asked for "accommodations," as well. I'm in the process of asking the learning center at this college if another upperclassmen, who asked for "accommodations," could talk to my son, before college starts this August about the process and its benefits.

David is now 18 years old and "he," must be the one to march into the learning center at the college and ask for accommodations. We have to cut the "apron-strings," and let him suffer the consequences of his own actions now and it is so very difficult to do. Watching your child take "mis-steps," and wrong choices is agonizing,but necessary for the process of maturation to take place. We'd just like to "ease," the falls he takes. That is why I keep trying to find a way for other knowledgeable people to intervene in his life and guide him in a direction that will benefit him. Concerned, caring, loving parents never give up on their children.

Again, I thank you for your comments about neurofeedback and I wish your family well.

JLA

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Last edited by suzey : 12 Nov 2007 @ 5:08 PM. Reason:
7 Jan 2008 @ 6:00 AM Reply # 3
ds95 Join Date: Fri 4th Jan 2008
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neurotheraphy

hello, i am new to this forum and was wondering if someone can go back a few steps and explain what is neurotherphy is and is it available in Canada, Ontario????? Thanks Danielle.

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8 Jan 2008 @ 7:57 AM Reply # 4
badger Join Date: Thu 8th Nov 2007
Threads: 3 Posts: 90
Alternative therapy

Their is also cognitive therapy. This is very useful in helping children and adults to adjust to life out there and react and also behave differently to things. It works mostly on behaviors. It has helped me a lot.

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8 Jan 2008 @ 11:36 AM Reply # 5
Kenda Join Date: Tue 8th Jan 2008
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I am also in Ontario

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danielle said: hello, i am new to this forum and was wondering if someone can go back a few steps and explain what is neurotherphy is and is it available in Canada, Ontario????? Thanks Danielle.
I am looking at a system called BRain Train for my 10 year old ADHD son.

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Last edited by Kenda : 8 Jan 2008 @ 12:41 PM. Reason:
10 Jan 2008 @ 10:12 PM Reply # 6
bonnie Join Date: Thu 10th Jan 2008
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Check out the cogmed.com website...

on the right side of the screen is a button to find someone in your area. Cogmed is the working memory brain exercises that you do on your computer. It's pretty cool how it works... the website is worth checking out. I found a local therapist and will have my son do it once they come out with the junior program for kids ages 5-7, which should be this spring.

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13 Feb 2008 @ 2:01 PM Reply # 7
Debbie Join Date: Wed 13th Feb 2008
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Neurofeedback - Play Attention

I am a LPC and School Psychologist in Tulsa, OK who utilizes the Play Attention System in my office. I used the Play Attention system with my grandson with good success. He is much more focused and getting in much less trouble for acting out at school, all with no meds. I was so impressed with the results that I became a Play Attention provider and have used it with numerous other children and adults with the same good results after only six to eight months. The results we achieved with my grandson have lasted for over two years and so not seem to be decreasing. I would highly recommed this program for anyone who needs changes in attention and behavior without meds. Please feel free to contact me by email if you would like more information on this great program. Debbie Bryan - dbryan@bryanct.com

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14 Feb 2008 @ 7:16 AM Reply # 8
Diane Anneken Join Date: Thu 14th Feb 2008
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Neurofeedback

My daughter just finished her first 8-week session of neurofeedback through our school - program called "Hope139" out of Michigan that has trained techs that go into schools and actually perform these labs in the schools twice a week. Now that her 1st session has been completed, we had her retested. She is a 10-year old ADHD child that is mostly inattentive. She is unable to take meds as they give her tics, as well as a number of nasty side effects. Her test results showed substantial gains pertaining to her attentiveness, focus, etc. Her grades this past interim were straight A's (before they were mostly B's). She rarely brings home homework any more, when before we suffered through hours of homework every night. She actually has maintained some friendships this year at school (amen!) and has done much better in all aspects of her life. I can't believe the difference! We start another session tomorrow! They do say that to really make significant gains that we should do a minimum of 40 sessions (we have finished 16 so far.)

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Last edited by Diane Anneken : 14 Feb 2008 @ 7:16 AM. Reason:
14 Feb 2008 @ 8:05 PM Reply # 9
Tanya Taff Join Date: Thu 14th Feb 2008
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Neurofeedback for those who suffered a traumatic brain injury an

Hi am finally able to log in properly. Tried some other times and wasn't successful. Have wanted to comment on this post for a long time. I went throug biofeedback about five years ago in New York and for me it was the biggest invention since the discovery of the lightbulb lol!! It was only AFTER this that I finally understood, in my body so to speak, why, a counselor that I had seen for some time, would comment, more than once, on this "anxiety" that she sensed whenever I would talk to her. Now I know that this was a side result of the head injury. It took me a while to realize that it didn't cure the "motivation" issue. That's about the only part of whatever HD element, subtle anxiety, that I had before 2002. Understanding that motivation is neurologically based "helps" a lot, but, maybe when I have more money I can do it again. Bioefeedback or neurofeedback, same thing, has brought me as close to "normal" as I remember myself at the age of thirteen before the car accident. So it was the best investment I ever made with some of my grandparents inheritance. Tanya

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16 Feb 2008 @ 1:31 PM Reply # 10
maggie rozinski Join Date: Sat 16th Feb 2008
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accomodations at college

Hi Jaccque. My daughter was diagnosed with dyslexia right before she graduated from high school. She had been able to compensate well enough so we really weren't aware that there was a problem, other than the migraine headaches that she had been suffering. She had already been admiitted to the Pre-med program at a private university in the Midwest. At first she was hesitant to ask for accomodations, but the disability office has been wonderful. The professors don't have to know what kind of disability the student has. It could be ANYTHING. They are just given some information by the Disability Office stating that she needs a note taker and that her exams will be given in the disability office. The note taker doesn't even know which student they are taking notes for. The notes are turned directly into the Disavility Office and there is no contact with the student. She will be graduating this May from college and even though it has been a struggle, she has done so well and we are so proud of her. She has become more comfortable with her disabillity and is no longer ashamed to tell anyone about it. She is proud of her accoplishments. The maturity level of college students is so different than high school and there usually isn't any labeling going on. My daughter has also found out that the professors have been very suportive and helpful with her accompdations. I also have a son who is going into high school next year and has been resistive to the idea as will for asking for accomdations so that he won't be labeled. Good luck to your son. I hope that he agrees to ask for accomodations.. They reallly help to level the "playing field" so to speak.

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Last edited by maggie rozinski : 16 Feb 2008 @ 1:36 PM. Reason:
1 Apr 2008 @ 4:01 PM Reply # 11
tatersmom Join Date: Tue 1st Apr 2008
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Looking at Hope139

Hi, I live in Michigan the east side of the state. I have a son that is 10 and has been diag. with adhd. He struggles with his school work but is great in sports. That has been one way we have found to help channel the high energy that he has. Just recent we were told that he needed glasses and that he needed vision therepy. I like the Idea of the hope139 neurfeedback better. Is there anyone that was told that there child needs vision therepy but opt to due the neurofeedback instead? Thanks Sherry

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1 Apr 2008 @ 8:23 PM Reply # 12
mj4 Join Date: Tue 1st Apr 2008
Threads: 3 Posts: 7
At-home programs like cogmed

Does anyone know of any programs like cog-med that you don't have to go to a professional for an initial meeting? I'm looking for some sort of computer program to increase working memory and sharpen attention. Thanks for any suggestions!

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1 Apr 2008 @ 10:06 PM Reply # 13
myaddkiddo Join Date: Mon 21st Jan 2008
Threads: 1 Posts: 7
RE: Tater's Mom

My son was diagnosed with visual dyslexia with suppressions the summer between kindergarten and first grade. We opted to pursue vision therapy for him. He went twice a week for an hour at a time. I think that it was one of the best things that we ever could have done for him. He went from reading at a level two in the beginning of first grade to a level twenty at the end of first grade. The therapy that they do with these kids is really pretty amazing, and I am not sure if it is something that can be replicated by other means. We also had quite a bit of work to do with him at home. It isn't a simple fix. To be completely honest, I am not sure that anything really "cures" dyslexia because sometimes he still sees things backwards/out of order. I have come to accept that his dyslexia is just a small part of who he is...and to some extent may always be present. I am very happy to say that he is at grade level for his reading now. I really don't think that would have happened if he didn't go through vision therapy. If you have any questions, feel free to contact me. Just to let you know, some insurance plans pay for vision therapy, so you might want to look into that as well.

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Last edited by myaddkiddo : 1 Apr 2008 @ 10:08 PM. Reason:
9 Apr 2008 @ 5:33 PM Reply # 14
Cathy Mitchell Join Date: Wed 9th Apr 2008
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Neurofeedback

My 9 year old son cannot take the ADHD meds because he developed tics. He went off meds 11/07. At first, it was scary as he did not know how to regulate himself anymore. After about a month, things got a little better. We started neurofeedback treatments and he has had about 8 sessions. My son was diagnosed with ODD as well as combined ADHD - he was very difficult to handle at school and at home. The past 2 weeks there has been a huge change - he will comply with requests the first time asked, stop doing things he's told not to do the first time asked, all with a good attitude - it is totally amazing - it shocks me everytime he does this as I am used to repeating requests many times, sometimes never getting him to comply. He also seems calmer and happier. He got his first commendation in school for doing something nice for another child - first time in 3 years. It is kind of hard for me to believe the neurofeedback treatments are responsible for these changes but nothing else in our lives has changed. So I have to believe that for my son it works and it is working!!! Hallelujah!!

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23 Apr 2008 @ 11:24 PM Reply # 15
smreynen Join Date: Wed 23rd Apr 2008
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play attention

Has anyone out there seen this software you can buy for home use called Play Attention? I'm considering buying it for our son and myself but wanted to know if anyone's heard of it and whether it actually works or not. It's a neurofeedback option - about $1800 to buy. My son is very smart and has a high IQ so doesn't qualify for an IEP and we haven't had luck on meds such as Daytrana (itchy and welts), Vyvanse (didn't help attention portion of ADHD), Concerta (makes him crabby), and Adderall (tics). I am so worried that he's just going to fall through the cracks in school.

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23 May 2008 @ 5:50 PM Reply # 16
jhaddock Join Date: Fri 23rd May 2008
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Neurofeedback

Hopefully this doesn't come across as an advertisement. I have lived with ADHD for many years and have gone through neurofeedback. I have seen so many great successes with this that I am now in charge of several neurofeedback trainers. It is definitely something to look in to and consider seriously.

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10 Mar 2009 @ 10:54 PM Reply # 17
2jacks&ajill Join Date: Tue 18th Nov 2008
Threads: 1 Posts: 8
bumping up

just bumping up this thread.....I've just finished a good book on Parenting Children with ADHD ( V Monastra) and he mentions this type therapy as being very promising. Off to look into this more....

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26 Apr 2009 @ 7:21 PM Reply # 18
family of add Join Date: Tue 25th Nov 2008
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Vision therapy

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tatersmom said: Is there anyone that was told that there child needs vision therepy but opt to due the neurofeedback instead? Thanks Sherry

They are 2 different things. Vision therapy is to wire the brain so it can comprehend what the eyes are seeing. We had great results with my younger son. Neurofeedback cannot train the eyes to work together.

We did neurofeedback with my older son. It didn't help his violent tendencies, as I was hoping it would. Interestingly, it did help his hypersensitivity. Perhaps our practitioner didn't know what he was doing?

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30 Jun 2009 @ 12:26 PM Reply # 19
Stoshu4 Join Date: Tue 30th Jun 2009
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Brain training software

Finally, I've found a posting/forum for what I've been looking for. I've read this entire post and saw references to BrainTrain, Cogmed, Play Attention, and Bio-Explorer. BrainTrain and Play Attention appear to be programs that you can purchase for home use and Cogmed looked to me to be something that needs to be administered at a practicioner's office as someone else noted. Can anyone offer any other programs for adults? These are all very expensive ($1700 - 2000). Are there any other programs that are also endorsed by the neuroscience community?

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